As part of our Liver Support education mission, here you’ll find stories that have been shared to benefit those with liver concerns and liver disease. These stories come from direct experiences or from experiences that are shared by their loved ones. We hope they are helpful, comforting and insightful.
Others could benefit from knowing your personal experiences. What have you done? What have you learned? What do you wish you had done differently? What is most important for others to know?
Please consider that your personal story could be exactly what others need to read to get them through – even if you don’t think there is anything particularly special about it.
In 1978 l was diagnosed with shingles it finally went away. I was back to normal and everything was going good.. Then one day in 1997 l had flu symptoms l remember going to the doctor my temp was 104 and he told me to go home and drink plenty of fluids and it will run its course and you will get better. My husband said l went back and saw his PA and he said the same. I don't remember this and l think that when l started to lose consciousnes. I had 5 young children at that time. My family said l was doing some weird things. Like speeding on the highway, going to the mall and not knowing where l was and l guess l was in and out of consciousness. Then in 1997 l was finally diagnosed with viral encephalitis. I was told l was in icu and l almost died. I went to rehab after being in the hospital. They transferred me by emsa. I had all the therapies and the thing l really can't understand is l was talking to people and l didn't even remember they came to see me. Then l finally got back to normal but only problems l had wascognitive issues, balance and walking. Seizures and they say mood disorder. I was going to a psychiatrist who kept giving me drugs and notlistening to me to help me. My vision got worst and l had to have cathartic surgery. Even through all that l went to college and got my degree in occupational therapy assistant. I was so proud of myself and l was ready to began becoming a therapist. This was in 2011. I was still having my same problems and l kept falling. I told my doctor and he just wouldn't listen. I had to had a fractured foot and then a torn acl, shoulder surgery, back and foot surgery. In 2014 after a beautiful women's cruise l fell and hit my head and was admitted to the hospital again. Now my diagnosis was autoimmune encephalitis, encephalopathy, seizures, MS, and mental problems. I went to rehab once again. I was in rehab in patient and outpt for years. The most devastating thing l can remember is being in restraints and l finally found out l was agitated and uncontrollable because of meds l was allergic too. Since then l had to have a tip surgery which l have five shunts in my liver. I been to so many neurologist. Then l went to the Mayo Clinic after so many falls and doctors couldn't figure out what was going on. I even fell in the store, they said l was hallucinating and as soon as l got to the hospital the psychiatrist came and they wanted to admit me to the mental unit. So when l went to the Mayo Clinic l saw the internal med doctor first and she ruled out mental illness. Then l went to the neurogist and she said it everything comes back normal l will send to behavioural medicine because she thought she knew my diagnoses was accurate especially conversion disorder and mental health. I went to see 2 psychiatrist and she wanted to send me to a third one but she cancelled the appointment. I had PET because they thought l had frontal dementia but it came back normal. Finally she said you been misdiagnosed. When l went to the vascular med doctor he told me one of my shunts their was blood seeping through. I went to the hepatologist there because he thought they would have to do the procedure again but they didn't but this doctor knew about all my symptoms and he told me if you have anymore problems l want you to call me. Well praise God a doctor that finally listens. I came home and my new hepatologist said l had hepatic encephalopathy. My rheumatologist said l elevated liver enzymes and elevated ammonia levels. I was having problems again with dizziness, slurred speech , numbness and shaking. I told my doctor l wanted my ammonia level tested and sure enough my levels were high again. After bringing taken off of lactulose l am back on it again. Last week again slurred speech, shaking, unable to walk and having problems with my sight. They thought l had a stroke after all the test the doctor said everything came back normal again. Next day l got a message to check my results from all the test and it said abnormal EKG. After being told it was normal. So now l just annoying my head with oil and pray and its free. And pray that l am finished with doctors and the medical community. And being only allergic to 1 med now it's so many the doctors are scared to prescribe me any. In all things l am so blessed and thankful until God l am still alive, So.l learned finally not to get upset just be aware and pray. And if he didn't tell me what to say or do l we ould still be just an experiment for those who don't care or at least listen. So be your own advocate that will it keep your sanity and definity pray. It cost nothing...
I was diagnosed with Hep C back in the day when they called it Non A - Non B Hepatitis. I had a liver biopsy and my liver was fine. I was fine for years with no liver damage that I knew of when I started itching and had something like hives, mostly on my back. I also would get a bloody nose every once in a while, out of the blue.
My doctors never even mentioned that it might be Hep C. They knew I had the virus. I had not quit drinking alcohol at this point.
Anyway, several months later I vomited blood all over the bathroom floor and passed out. Luckily I happened to be at my parent's home, so they called an ambulance. After one stop and the local hospital, they sent me to a bigger hospital in the big city about 2 hours from where I live. Sirens blasting all the way. Talk about a nightmare!!
Anyway, I ended up finding out that I had stage 4 cirrhosis with esophageal varices. I was in shock and very scared. I was in the hospital for 5 days, 2 of which were in intensive care. I almost died from losing so much blood.
Here it is a little more than 2 years later and I've gotten rid of the hep C virus and am taking awesome supplements for my cirrhosis and also eating a clean diet. I'm doing great. My lab tests came back almost normal after clearing the hep C virus. My meld score is currently 10, but I'm doing my best to get it down to 6, which is good.
So, my story is, no matter how bad you think it is, you will make it through it. Definitely QUIT drinking alcohol. I don't drink at all now and to be honest, I barely miss it. Sure it's a pain in the butt sometimes to have to take so many supplements and eat right, but it's worth it. I'm even losing fat!!! :) Hang in there! You can do it!
After many trials from 2006 up to last year 2016 on top off news I was stage 4 chronic liver hep c geno1 I was put on Harvoni 1 pill for 12 weeks but I was told there was an energy buzz wow a buzz I never got any sleep 5 weeks wacky state to be in as I tried to seek help surprise surprise off the meds end off , but on bloods non detectable yes I was very confused I never trust any one or believe them after years off let down , I now am trying to live some normal life style that suits me , the policy of waiting till your stage 4 is counter productive for all involved, I hope that you to get a chance , this harvoni is maga cool at killing hep c , never give up you can't you owe yourself a chance especially if your from old school 50 ish major respect to be still around where all square pegs in this round hole world
Stay cool .
When i had my first child in 1983, I had to have a blood transfusion and ended up with Hepatitis C. In 1998 I found out and was put on interferon and Ribovirin which I only took for a very short time, since I had an anaphylactic reaction. I had severe tiredness and some pain throughout the years. Then when Solvadi and Olesio came out I was put on them for a 3 month period and am Hep C free now. So much more energy and better health now. Unfortunately I have chirosis of the liver and have to have MRIs and labs done every 6 months to look for cancer. So that’s a worry. My 3 children were tested when they were younger just to make sure they did not get it from me. My husband has also been tested. We’re all good. We try to live a healthy life, very little or no alcohol, healthy diet and exercise. I will be 59 this year and feel better than when I was my 30’s.
I had cancer years ago myself, Lymphoma B a very fast spreading cancer. I went through chemotherapy but after I was released and cancer free the Doctors said it will come back. So I started
my own computer information search. I found out a
German Dr. in the late 1800's or early 1900's found out cancer is killed by oxygen. It had to be oxygen through physical exercise to fill the blood with as much as possible and a high heart rate, not just breathing pure oxygen. So I remember from high school health class cross country skiing is the best aerobic exercise. So for around three years after I started my own exercise program, about three times per week I would turn on the music and "cross country ski" in my bedroom. Open the windows or even go outside for greater clean fresh air. Stand still, bend the legs and swing both arms at the same time like you do when you cross country ski using only your ski poles to propel yourself up small inclines. Just after two songs the sweat was rolling off the body. Heart rate would be more than double after 20 to 30 minutes. Then let the body cool down. Another thing I have changed is my eating habits. Sugar is what cancer lives on, and Americans are highly exceeding their daily sugar amounts. But if you do this exercise I recommend starting slowly, especially if your not in good physical shape. Also find a way to increase your daily dosage of magnesium in the body. Through Epsom Salt baths or Magnesium supplements. There is also a lot of natural cancer fighting remedies through Dr. Axe website or Dr. Mercola website.
I'm a mother my son was diagnosed with cirrosis 18 months ago through Drink he's 42 years of age he was an alcoholic but was in denial for a very long time we were and are devastated he has been sober for 2 years never touched another drink but he has tried to overcome this it's very hard for him only he has coronary heart disease and is insulin dependent this is all caused because of drink and drugs ie cocaine I am so proud of him he''s helping others who are in the same position he was in but my son nearly died with burst varices the work he is doing to help people is recognised by so many people and he can stand up and talk about it
Greetings, I got hep-c from a tattoo back in the late 70s. In the early 90s I was finally diagnosed with it. I've been taking milk thistle since then. I've taken really good care of myself and kept it at bay. They put me on interferon which my body rejected halfway through the program. I've worked very hard to keep my enzymes normal through diet, being very positive and an array of various herbs. Two years ago they finally put me on harvoni and I am hep-c free, although they also put me on blood pressure medicine which gave me cirrhosis. I will never stop fighting to correct this, just remember your liver is the one organ in your body that can rebuild itself it can regenerate. Change your mind and change your life! Good luck and good life to all!
I live in hell everyday with severe back..liver and stomach pain and nausea since i had my gallbladder out..my liver kills me and gives me horrible pain and i barely eat..
I contracted hep C in 1974. A bit over two years ago I was sent to a liver specialist, then another specialist and it was discovered, thru a scan, that I had hepetucel carcinoma, liver cancer, I was lucky as it was still operable. I had 1/3 of the liver removed plus my gall bladder. To cut it short when I got out of hospital I started a 90 day course of Havani. Thru scans it had been discovered I now had five small Timor's in my resectioned. I took the course of Havani and it acts like fertilizer on Tumor's and I think it made the Tumor's worse but it killed the hep C The doctors were nice but wrote off any chance of living. They told me I would go into hepatic encolopohy fall asleep and die. I had altered my diet to my version of anti cancer. Have used milk thistle herb for years. The doctor put me on Nexivar tablets. The most I could tolerate was one a day,any more and I was useless. After months of exercise,walking,clean food but still smoke? This is with three monthly scans etc I have been declared cancer free! This doesn't happen or very rare. Now the cancer has been gone for more than six months but I am told to keep taking one Nexivar plus three blood pressure tablets to off set the effects of the Nexivar. I am now cutting all my meds in half everything at half dose with a view to stopping all of it shortly The doctor has to say keep on taking the meds because no one knows what stopped the cancer. I am sure the Hepatitis C caused the liver cancer and just as sure it won't come back because the Hepatitis C is gone. Best wishes and good health to all. Chris
At 16, was hit by a car. Was given tainted blood products to save my life. 1993, told I could not give blood due to 'Hep C antibody contact'. Cure, at that time, sounded WAY worse...fast forward, spouse noticed belly distention and yellowing eyes.
Dx: Hep C, cirrhosis. Rx: Take Harvoni--viral load reduced from millions to zero...6 mos later increased to 91000; 2nd Rx round, different drug prescribed. Wait! now there's a 'mass'!
WARNING: Hep antivirals MAY lower one's immune system enough to 'allow' cancer to grow.
Next: radioactive beads placed/injected toward tumor
Decision: NO ALC or refined SUGAR, flour or foods; Change to-- ALKALINE diet (cx loves sugar/acidic hosts); to-- alkaline-hydrogen fauceted H2O system (Ultrastream)
Increase: antioxidants, vitamins and minerals through foods, smoothies and supplements.
No symptoms; belly swell and eye yellowing gone; energy level great; happy
Will keep you posted!
I was diagnosed with a fatty liver NAFLD about 4 years ago. I'm 6'2" and weigh 340lbs. I've been having pain on/off around my liver area since 2008. Two years ago I was told that my liver has scarring fibrosis that is one level below cirrhosis. I'm a very obese person having been fat all my life. I've lost weight several times in the last few years on diets only to eventually fail miserably and end up in the same lifestyle that led to my fatty liver. I'm so incredibly upset and disappointed in myself that I haven't been able to save my own life and eat correctly. In two days I'm going for another fibrosis scan and i'm afraid that i'll be given some really bad news. I can feel my health slowly failing over time, especially over the last 6 months. I deal with bone sucking fatigue, malaise, liver area pain and a general ill feeling. My symptoms can come and go from day to day or week to week or month to month. When I lose weight I usually feel better for a while, but my diet never seems to last. Recently I started eating poorly again and have been dealing with constant fatigue for the last 3 weeks. Sleep helps a little, but this kind of fatigue is not cured by rest. I'm trying once again to set goals to lose weight for myself. I need to think big picture and long term 2-3 years in order to succeed at saving my life, but I have to focus each and every day going forward to eat to lose weight and eat healthy. I have two kids age 10 and 7 that I love so much. It would haunt me in my grave if I couldn't live long enough to see them grown up as adults. I would love to live long enough to see my daughter get married one day. I have a deep sadness for what i've done to my own body and I don't understand why my brain constantly chooses to eat too much and/or eat the wrong foods. My very life is at stake, but somehow I'm too stupid to consistently do the right thing. I guess an alcoholic might feel the same way. I just hope that THIS time when I try everything will be different. If anyone else is in a similar situation I'd sure like to hear from you.
Sir my husband suffering from liver cirrhosis and done tipps procedure in the Year2016 but Still taking alcohol from last eleven months pl help by answering me
Hi everyone! I was diagnosed with hepatitis two months a go. Due to financial problems on my side I couldn't do routine test to know whether is hepatitis A,B,C,D,E.
Three days ago I started feeling dull pains on my right upper of my abdomen, the next day I started seeing rashes on my wrist to the fingers and today too I'm feeling another sharp pain on my right chest. I sat down and recalled what ate through out the month and I got to know that I consumed red meat a lot. I would like to advice the fellow hepatitis patients that if only they can cut off eating red meat it gonna help them.
Thank you so much
Hello, my name is Pamela. I was diagnosed with Hepatitis when I was 14. That was 43 years ago. I want to share my story of a childhood journey that affected my whole life. I’m not even sure if I still hav it or not. I have been told both a couple of times since catching it 43 years ago. Doctors have confused me more than anything. How I live today is how I live. This is all I can write for now. I will continue soon.
I am going to finish my Epclusa medicine to treat the Hepatitis C that I got through a quack hairdresser in pakistan. I will write in detail in the 1st week of April when I finish my medicine.
Hello , my name is Leigh, im from Tuscaloosa alabama,(ROLL TIDE), I've been married 19 years this past feb.11, 2018 to the love if my life, my high school sweet heart, who was dignoised with NASH, nonacholic cirroshois, two years ago October 9, 2015 we were giving the most selfless, gift anyone could get, he was called with a matching liver. He has been doing awesome until now, his liver enyzens are elevated for the 2nd month in a roll, now he has to have a liver biopsy. Im sad, scared and don't know which way to think. In the back of my mind in thinking oh no, here we go again. His biopsy is scheduled for the 16th of this month. Does anyone have any suggestions, advice, knowledge oh why this could be going on. Anything positive, negative , caring words or thoughts. Please help.
I had my gall bladder taken out a few years ago and they saw a "spot" on my liver....doctors sad it was s hematoma and it was not cancerous. Last week I had an attack of pancreatitis (history of that since gall bladder thing!) and now the "spot" on my liver is 6 cm.....still non cancerous, they say but I was wondering if anyone knows of a way to make that go away because it hurts when I bend over. I'm trying to eat better, healthier...and I don't drink alcohol so....what to do??
I had Hep C for over thirty years. I'm sure it contributed to my heart and kidney failure. When a cure for Hep C came I was lucky enough to have insurance that paid for the thousand dollars pills. One of the tests I took showed my liver had zero level fibrin. I think this was because of the liver supplements I took to fight my disease. In twelve weeks I was cured! it felt amazing. it's giving me new hope. All I need now is a kidney transplant or an artificial kidney. I've seen a lot of my old friends die of liver disease. Don't be one of them.
I'm 63 & recently diagnosed with NAFLD. I was raised Italian on a Mediterranian diet & other fast/comfort food. I became obese even though I was an avid walker & home cook. I do not smoke or drink. Researching liver health I discovered Eat Right For Your Type. I now eat Greek & Asian only, have lost 30 lbs in 2 months, have normal blood pressure. Hopefully my liver will revert to normal though my Dr says it will be a couple years. I can only hope and pray.
VERY VERY IMPORTANT
I hope all my facebook contacts read this and and give this some very, very serious thought. Has many of you know about 2 yrs. ago I anounced that I HAD Hep C and beat it, and I emphasize "HAD" as there is a "CURE" yes I said CURE!!
It has been just over 2 yrs now of being totally 100% cured of this horrible disease and feel I have got a new lease on life, and have got to spread the word as much as I can to help other people. There are sometimes no symtoms at all for a lot of people and they feel perfectly fine for many, many years, while others get very sick. Everyone is different. I did not find out until I saw a new Dr. many years ago that was up to date on blood work for signs of Hep C on blood tests and knew what to look for. If it was not for her I would have never known and probably would not be here to tell my story. Every Dr. can issue these tests but you have got to insist they be done and not take no for an answer. Not all Dr.'s are educated about Hep c and are quick to say you will be fine when you are really not. Stand your ground and insist!!.......Get a different Dr. if need be. Remember The squeeky wheel gets the grease!
The new CURE drugs are as simple as just one pill a day for 8 to 12 weeks, (I had to go 24 weeks) depending on what geno type you are, (I was type 3 one of the toughest ones to clear) with NO SIDE EFFECTS!!.....YES NO SIDE EFFECTS!! Thankfully the old dreadfull interferon-ribavirin combination treatment (basically chemotheraphy) is now a thing of the past for the most part. I had gone through this old treatment for 3 yrs with no sustained results, but with the new drugs out, I was totally CURED for good within 6 months.
Here are some things one should ask ones self: Are you a baby boomer (people born between 1945 and 1975), were you vaccinated in the 50's and 60's for chicken pox, polio, mumps, measels etc. because the sterilization procedures back then were very questionable, prison, personal, Have you have ever had a blood transfusion, done intravenous drugs (even just once), received any blood products before 1990, do you have any tattoos, exchanged blood with anyone, ie: fighting, blood brothers etc., had any surgeries, colonoscopies, questionable dental work etc. etc. prior to 1990. Anything that has involved the exchange of blood,
Hep C is ONLY transmitted through tainted blood. It is NOT in any other bodily fluids unless they contain blood.
If you match any of the above criteria you owe it to yourself, your family and friends to get checked out. I have lost way to many friends to Hep C and do not wish to hear of anymore, SO I BEG YOU, Get tested and checked. One cannot fix what one does not know or understand
The World Health Goal is to eradicate this disease 100% within ten to 15 yrs. which can be done if the masses are informed, educated and CURED.
Never thought I'd submit any info until I experienced a very serious but privately hidden health experience. about a week or 2 ago I was almost out of my pain management prescription so I tried to supplement it with some other OTC product for my severe lower back Pain. Soon I began having severe abdominal discomfort and lack of appetite. God spoke to me and gave me answers to my concerns but I was truly afraid about the consequences I was experiencing. Please, protect your gut but do trust in the truth of His Promises.
I'm a 57 yo female with End-Stage-Liver-Failure. Transplant is my only option. I am trying to live with what little liver function I have left. I'm learning diet is everything. I also have Esophageal varicies, a result of liver cirrhosis. Salt and sugar are the enemy now, as well as alcohol. I've learned all processed food is bad. If you're taking meds for Gert, don't take tumeric, bad cramping. Milk thistle really helps in my opinion. I am always looking for liver friendly recipes, and juices to drink with no high fructose corn syrup! Stress is also an enemy. You must have emotional health as well. The toughest part for me is extreme fatigue, and my joints hurting. Any help out there for that? Constant pain/pressure can be so exhausting! Does anyone else ever feel alone, on a deserted island? This disease... is a lonely one.
I was prescribed Elcupsa and 90 days later I was cured. No sets tion of the HC viruses detected. I relieved a blood transfusion back in the 70s, so I. guess that how I got the disease. I was never an intranveous user nor anyone I dated to the best of my knowledge. The side effects of the medicine were no minimal. My medication was also free, thank God. I used to tire easy. I had a lot of stomach bloating and a lot of flatulence. In glad to be cured. My energy level is normal now. Medicare paid for my prescription. I also had great Hep C doctors, of whom I was referred to by my personal physician. My liver also used to hurt, my urine was very dark. My urine is the Corte color and my enzymes are normal again. Glad to be cured.
I have liver cancer and it sucks. I have no social life because I'm either going for blood work cats cans or doctor visits. Thank God I'm with the loving woman that understands
I was diagnosed with Hep C 25 years ago. From that point on, I tried to take better care of my organ, but that only involved cutting down on my social drinking substantially. At the time, there were no resources that provided additional recommendations. Two years (maybe 3) ago I was successfully treated with Harvoni, and I thought I was home free. Then a year and a half later by virtue of an MRI that was done to follow a couple of benign cysts on my kidney, there appeared a hepatocellular carcinoma on my liver. I had never heard of one of those before, and when I did some research, I got scared. The hospital that discovered it could only offer open surgery, and their description of the procedure caused me to look for another way. I found a presentation on line by a surgeon at Johns Hopkins who performed the operation laparoscopicly, and that’s where I went. The surgery was a resounding success, but the high recurrence rate still makes me nervous. As a result, I have altered my diet drastically, subscribed to a number of cancer related websites, and begun taking a boatload of supplements recommended by these site and by lla very knowledgeable local herbalist. I’m now getting MRI’s of my liver every 6 months, and so far, so good. The bottom line here is that 1) Harvoni is very effective; but 2) you could still be at risk for liver cancer. Do everything within your power to take care of this important organ. Follow the advice given on line - only organic foods, lots of fruit and vegetables, very limited alcohol if any, and zero sugar or sugar substitutes except stevia, which comes from a plant. Also cut down on high glycemic foods like bread and pasta. These recommendations are common throughout the websites I follow.
I was diagnosed with hcv type 1a in 2009, stage 3 cirrohtic liver and perhaps 30 years of this disease which led to sever scarring and bridging fibrosis, 12(dbl therapy) & 48 weeks of triple therapy talaprevir finally did the trick. Right in the middle of the second treatment I came down with hcc(liver cancer) which caused me to have a lar (laproscopic liver resection). I have been cured of hcv, sections 3&4 of left lobe completely regenerated, I feel very lucky and do know there is no cure for hcc but I everyday is the best day of my life, I have completely recoverd and second chances do not come often but today I am in better shape than 20 years ago with a great daily exercise regimen and with an excellent diets and supplements, I never look back. My advice to anyone is to do Harvoni(a piece of cake compared to old therapies), get well , make some changes, you also will never look back again too!!
I was diagnosed with advanced liver disease/cirrhosis 3 years ago. My mother and sister, unfortunately, lost their battle to this illness and I was next. I grabbed the bull by it's horns: drink pure lemon water in the morning, on an empty stomach, high quality milk thistle supplements, dandelion root and relaxing exercise (walking on the beach, yoga). Peace is a must. Don't forget to have a clean diet, cut way down on sugar and drink water.
Some history: I am a 78 year-old male and have always been active and, except for Reumatoid Arthritis, have been quite healthy. I mention the arthritis because, I believe, the arthritis medications --- infusions and other oral medications I was prescribed over 20-years ---led to my current liver problems. Two years ago I was diagnosed with stage-4, non-alcoholic cirrhosis. My Oncologist told me there is no cure and the only thing he could do was to help keep me alive a little longer than the 5-year expected life expectancy --- his main concern at this time was to help prevent cancer from developing. He prescribed loss of weight through exercise by walking at least for 1/2-hour, 3x/week and proper nutrition. In June, 2017, I was diagnosed with a bile-duct tumor that was not accessible for surgery nor radiation --- so this left chemotherapy. We tried infusion, then the pills, but my body reacted negatively to the chemo. At this particular time the mother of a friend told me she began taking CBD (cannibisoil) for breast cancer and in 6-months her cancer was all but gone. I did not believe it, but I tried it anyway --- what did I have to lose. I obtained proper licensing and medical advisement (I understand it is legal most everywhere now) and I began taking a 300mg/15mg ratio of CBD/THS (THS is the component that gets you high). The THS is low enough that it does not get me high. Here are the results thus far: In June I was diagnosed with a bile-duct tumor and I began to take the CBD 3x/day -- my C19-9 marker was 200; In August, my C19-9 marker was 181, and most recently in December, my C19-9 marker was at 100. I began with a dosage of 3 drops-3x/day for one-week and gradually increased the dosage to 1ml-3x/day. I have just increased the cannibis ratio to 500ml/9ml 3x/day and have also just started taking Flax Hull Lignans every evening before bed. Merry Christmas and I am praying for all of you with this terrible disease.
So I need help and info i had my gallbladder removed in March my surgeon did bioposy of my liver because he said it didnt look good, the results came back f3, my family dr didnt recommend a liver specialists So I made my own now its December and my results are horrible. NASH, Cirrhosis, Hemachromatosis. Hepatatic encephalopathy, I drink no alcohol am diabetic, no hepatitis, so from my understanding hereditary anyone know of any alternative medicines? I'M still in shock
It sucks. You can't do anything you want.rather be dead.
Been an alcoholic all my life. BAD! About a year and a half ago I started feeling weird mentally and went into a brain fog for about 3 or 4 months, accompanied by indecisiveness, slow movement, panic attacks and shaking feeling from inside out, then lost my appetite for about 3 weeks. About the time I was coming around mentally and getting my appetite back I started having a swollen feeling in my abdomen. I didn't know what was happening. Then started having bowel problems including lots of mucus in stool. After all the testing I had done the only thing I had was a grossly enlarged diffusely fatty liver. I didn't stop drinking till about 6 months ago cause the doctors I saw during this time never said my liver was the cause. They just shrugged their shoulders and told me they didn't know what was wrong, which left me feeling frustrated and devastated. One doctor told me though the enlarged liver can push over and down on everything in your abdomen. Pretty well got to be the problem. Things are getting a little better, not mental anymore, bowels are slowly starting to work better. Swollen feeling hasn't gone yet but I've been told that could take a year or better. All the fat has to get out of the liver before it can go down in size any. I'm still waiting for this.
I was diagnosed with PSC an autoimmune Liver Disease over a 11 yrs ago and in March of 2017 underwent a Liver Transplant that has given me back my life. The journey with PSC was crazy at times with many symptoms that I’m sure are common across other Liver Diseases. The symptoms included severe itching, cholangitis attacks which occur when the bile ducts of the liver become blocked. Also fatigue. This was the hardest part of the illness to overcome. If you would like to read my story in more detail and would like to learn more about PSC, I’m writing a blog at http://matt-lawrence77.co.uk
Hi there, my story is long but very educational for anyone who is or has suffered from Liver Cirhosis. just over 5 years ago I was successful in receiving a life saving liver transplant. That is why this is so hard for me to write. I went alcohol free for 5 years. approx. 1 1/2 years ago I began casually drinking again, not cronic by any stretch but fairly regularly. appox 6 months ago I quit, cold turkey again because I felt guilty and ashamed that I had done this after someone saved my life...I have, again, been diagnosed with cirrhosis. I have a healthy diet, work out regularly at a gym, walking at least 3 times a week and it still got me. I have virtually no symptoms except a bit of water retention which my doctor told me that reducing or eliminating salt would help that immensely. I am embarrassed and ashamed that I drank again because it was so easy for me to quit. I was totally flabbergasted to find out I had cirrhosis again but I was told it came on so quickly because I was already compromised by medication I am taking for anti rejection etc. I don't mind saying I am more than a little scared and was wondering If there is anyone out there that has been through what I have and are feeling like I am.....I need some emotional reinforcement to get me through this. thanks for listening
Hi. I was diagnosed in my 30's with NAFLD. It wasn't my diet that caused it, it was actually Excedrin use. I had no idea that NAISD's could cause so much havoc on a person's health. I used to take an Excedrin and within 20 minutes would have pain in my liver area. After much research, I learned about Milk Thistle and NAC supplements. I've been taking them for years and have completely corrected the NAFLD. I still take Excedrin from time to time as I have migraines, but I don't experience the pain anymore! Praise God!
40 years ago I worked in a machine shop as a custodian. Came in before the machinist and cleaned up oil and mopped floors with 111 Trichlorethelene. In the following years, whenever I had a blood work done with a physical exam, I always had elevated enzymes in my liver tests. Doctors couldn’t explain why, it was only years later did I make the 111 Trichlore association. I read about Liveraid/Liverite. Started taking it and when I went for my Executive Physical at Cedars Sinai, my doctor was shocked that after years of elevated liver enzymes, my liver was now testing in normal ranges. He told me that in all the years he practiced medicine, he had never seen this kind of improvement. I got a big smile on my face...he asked me what I had done...I told him about Liveraid/Liverite. He was beyond shocked and took the information down. And as I usually do, I then take my Executive physical results to my primary care physician at Kaiser for follow up items and she immediately noticed and asked me what I had done. Told her as well about Liveraid/Liverite. So will be taking this product for life! Thanks so much. I am very grateful for this product!
It started by Donating blood in 1993. I was written back and said my enzymes were extremely High. And to not donate blood any more. They suggested I go to a Gastroenterologist. I did and He said they did not know much then and whatever script I wanted he would write it. I started leaving. Then he says you know the top Doctors who are studying is this Place and this Dr. I called and had a. Biopsy they wanted me coming back for 6 months I believe it was as some People can fight it off and others progress. I was the latter and Diagnosed with Hepatitis C. On Biopsy I was Stage 2. At this point in time we estimated I could have had the virus 10 to 16 Years. I always wondered why I always felt tired had a low grade fever and my spleen was enlarged. In 1997 i was asked to Participate in a study for Pegylated Interferon. I think it was a year of meds. Then 6 months they Followed you. I did pretty good. Then the side effects started happening. My children were young. I had no help and I asked to leave the study. It was changing me. Mentally. It was really horrible stuff. Since about the year 2000 i have had my blood work monitored and Biopsies. In 2013 i was Hospitalized to run a test to see if I had Cancer. It was not. But I remember the Dr. Yelliing at me to get out and get seen for my Liver. So i did I had a Fibroscan.i left crying by that year i knew my virus had gone into Fibrosis. So I was shocked when the nurse told me my Liver looked like a "burnt pot roast" and I was in Cirrhosis. My Dr. Put in for treatment. Denied once appealled with the info needed and I was approved for Harvoni. I went on it and had no side effects and My virus that was killing my Liver is gone. 3 months of Harvoni. I need to have blood tests 2 times a year make sure it does not come back then ultrasound to make sure I do not start heading into Liver Cancer. These days I am dependent and Have a caregiver and not yet 50. I also have had a stroke after 2 major back surgeries. Having back problems and Cirrhosis is very hard. I am easily fatigued. I have not been able to work since my back surgery as I did caregiving. So I hope I find something soon. I don't get Disability. I am scared pretty soon I will be Homeless. So this is My Story I know quite a lot about the Disease as I have had it for quite a long time but known for 24 years. I don't drink nor do drugs and try to do my best. One day at a time. A lot of People don't understand that when you kill the virus the Cirrhosis is still there. Scarring from many years with the virus. I was Lucky I had 2 Children and they were tested both Negative. Any questions contact me. Where will this story may be shared? Thank you,Jena
Hi, I am rashid, Now i am 43 years old. I am married. My job criteria is Graphics design. every time i have some trace regarding my job circle and family also. from the 10 years and above i have constipation and my body immune system is not properly working for the day to night. every time i have some absent mind and irritation. my liver function test ALT result is Mild fatty liver in 4 years ago. all time i feel dresseling and all time stomak gas spread in all body. this is very much harmfull for my life style. pls. suggest me for better cure.
I am 57 and was diagnosed with End Stage Liver Failure due to alcoholic cirrhosis. I knew I was in trouble when the whites of my eyes turned yellow. I swelled up like the blueberry girl on Willy Wonka! They gave me my first "tap" and took 6 liters of brown fluid out of my gut. I am 5'1". I was given six months to a year. I quit drinking, went to treatment and then church. My "Meld" score is currently 12. I was on the transplant list, but got better so I'm in the "pending" column for now. 4 years now and I'm always extremely tired. My joints ache terribly. My urine is Amber color most the time. I take Lactulose to "flush" the ammonia out. It helps me think better as well. Milk Thistle helps my liver. I believe cutting out processed foods, salt, sugar, all the fun stuff, helps enormously. Your whole diet can make such a big difference. Just reading about other people's experiences helps me Alot. I wish nurses and doctors would stop judging and assuming, and basically treat you like a "drug seeker" when you go to ER in pain, not knowing if your dying, or you have cancer now, or your liver (what's left of it) is exploding. Every body has a unique story, a different cross to bear. Believe me, I didn't set out to become an alcoholic, and I am 4 years sober now, and there's not alot of support with this disease, only judgement and ignorance. Just filling us up with pharmaceuticals is not helping a person whose liver is not functioning properly. The most important thing is to keep your system flushed and eat only fruits, vegies, nuts and legumes. That's just my opinion. Thanks for reading my story.
I got Hep c from the tainted blood scandal by the Red cross for buying tainted blood. And Bill Clinton for selling it to the free world killing over a million people. Gays prisoners drug addicts alcoholics with poison in their blood. It's about money. I've studied this scandle nice 1991. I was in the hospital dying but as always I've kept myself alive by doing herbs that our Lord used to heal everyone with. I've been told I've not got long. I'd like the monies owed. As a real true blooded Canadain lost my great grand farther. My two uncles and my farther in the forces they died or killed. Think that makes me a true blooded brother.
Hello Everyone my name is Ron and I live in Calgary Canada. I contacted hep-c from tainted blood sold to Canada by a certain source. i know the source ive studied hep-c now for twenty yrs. I've had it since 1986/7. I got hooked in a meat plant under my arm it just missed a main arterie. But I was bleeding out so I got blood there is a big ambulance and on my way to the trauma center then they fixed me up. I have not drank for 33 yr August 22. Never smoked and never done drugs. It took a few years to find out why I was sick all the time. They even thought it was my gull blatter so they removed it in 1989. After that I went from 240lbs to 172 lbs. Felt a little better but I told my family doc I don't have gull troubles. He said yes you do so I went and had it taken out. Never should have it was the hep c in my body. So after that I moved and started travelling Canada the country I love. I went 10yrs feeling great. I went on herbs used for thousands of yrs to help me. Well it worked for a bunch of years so I thought I was me along. No way anymore. I moved to s small town got married have two young children uninfected by this deadly virus. Well in 2008 I started feeling sick again. I have contacted the blood.ca hep c compensation people three times in the last dew years without a response. I'm due the funds owed still from 1987 . Later in 2015 I went on Havoni it stopped the hep c but I got it to late they tell me so a transplant is out. My liver is not strong enough to go through a transplant makes know sense. My guts are sticking out of my body now pain every minute. My legs swell up Hugh even walking 10 minutes. My family I've lost my wife is way younger Ryan is 16 my boy and Shardae is just 13. There both clean as same for my wife. She Peggy my wife said she cant take anymore so ive lost my new family. The compensation has taken me 33yrs to get this far. I know I'm elagable for the comp what's the hold up. I've wait years now. I'm poor very poor and sick. I have nothing left now at 63 i am living with my sick mother. Im in so much pain for so very long. I'm now lossing the battle. My abdomen.is Hugh and distorted very ugly. Anyone out there want to help just text or messenger me. May God be with you and your loved ones.
I was suffering from fatty liver disease after liver donation to my father. His liver was completely damaged due to hepatitis c. After 6 months of liver donation i developed fatty liver because of alcohol use. No i quit alcohol and started taking vitamin E cap. twice daily. I also tried a vibrating massage at low power mode or you can say on minimum vibrating mode over the upper abdomen right side where liver is placed by God. I really took some few days for recovery from fatty liver. Note: you will have to stop drinking as soon as possible if you came to know that your liver is fatty.
I am 54 years old and in 1984 I was married and I had lost two pregnancies that year… The last one being an etopic pregnancy. The tube had ruptured earlier in the day and I had to have emergency surgery. I almost didn’t make it through the surgery… I needed 2 blood transfusions. 30 something years later I’m having some health issues more to do with allergies but while we were testing my blood for different things I kept seeing the commercials for hepatitis C… Being born in 1963 I said test my blood. Sure enough. My insurance covered Zepatier. My medication arrived… ( Packaged like I have never seen any medication packaged before my life!!) my medication was $54,600 for the 12 weeks that I personally need to take it for… One pill a day… For 12 weeks I felt absolutely nothing while I was taking the medication… Nothing… I didn’t feel more sleepy I didn’t feel anything… I just took the medication. I went overseas for three weeks right when I was done taking the medication… When I came back my doctor had sent me a prescription to have my blood taken .Which I did. A certain manner time went by and I did not hear back from my doctor so I called them… They said they would have her call me back… A few minutes later my ACTUAL doctor called me! ( A rarity these days !!) I pick up the phone and she said “you’re cured“! ( her office specializes in treating hepatitis C but she is also my Doctor Who performs my colonoscopy is… So I know her fairly well ) . I said I bet you don’t get to say that very often knowing that she is also a colon doctor.She said “yeah ,unfortunately not”. We started talking about my liver and she said my liver looked better than any liver she has seen in so long… I said you’re kidding me? She said no your liver is just about pristine… I was thinking about all the drinking I did in my 20s… LOL and the link the drinking I still do now occasionally ( very occasionally more just joking !!) but regardless I’m thinking about how I couldn’t believe that it was as good as she sad. Couldn’t believe the medication really worked as described… Couldn’t believe I was truly cured! Having breast cancer five years ago I never thought I was going to get good news again! Anyways the main reason that I wanted to write this was I wanted to know if somebody else experienced this as well because I have been putting this in Google trying to see if this is happened anybody else and if it has can somebody contact me and just let me know that it has I have been waking up my whole life or almost my whole life at 5 o’clock in the morning 5 o’clock in the morning has been my time even when I was younger… I’ve had hepatitis C over 30 years… And almost that whole 30 years or I would say that whole 30 years I’ve been waking up at 5 o’clock in the morning . Going through menopause I’ve been waking up at 4 o’clock as well… But almost to the day and this is not a joke… To the day that I stopped taking those upper tier and I was cured I started sleeping till 67 even sometimes 8 o’clock I sleep in like a normal person… If I go to sleep later while then I wake up later if I go to sleep earlier well then I might wake up at 6 o’clock but I haven’t woke up at 5 o’clock I don’t think once since I heard the words “ your cured”. Coincidence? I suppose so… Almost to the day… How strange… I’m thinking it has to be connected… And that is the gods honest truth I have not woke up once at 5 o’clock in the morning since being cured. If anything similar has happened to anyone here my email is above I would just be curious to know… Thanks for listening! Or reading I should say! I hope everybody has the good luck that I had… Modern medicine ??????
I was diagnosed with cirrhosis of the liver three years ago but I don't know how long I've had it i am 37 and i was a alcoholic but been alcohol free for three years + I've had a fibro scan which the score was 79 but I've not had any information on what this means only that'll need a transplant in time at the moment am in good health but recently I've been feeling really bad pain in my liver for the last few days and my stools are black most days and when I we it smells absolutely disgusting and brown in colour I was wondering if anyone else has had this problem and what it means I'll be great full for any information thankyou
Received a blood transfusion in 1980 when my daughter was born. A few weeks later, I became jaundiced, itchy, very fatigued & my dr said it was non-A,non-B Hepatitis. Wasn't called hepatitis C yet. Against my GI dr wishes I chose not to do the standard route of interferon & ribavirin. Instead I did all I could to optimize my immune system. I found a dr in NYC & went for monthly vitamin C Infusions. I did this for almost 20 yrs until Harvoni came along. I'm now cleared of the virus. I didn't drink at all throughout those years. My liver has some signs of cirrhosis but w a healthy diet it's beginning to reverse itself.
I contracted hep c at the age of 17 when I ran away and only shot up for 2 weeks using a needle after someone I thought was clean. I got severely ill and went to the hospital. They told me I was infected. I waited 2 yes to get on treatment bc I ran away again. I was a troubled teen and at the time I didn't really know what it was but I thought it was a joke. When I went to get on treatment the first Dr told me that he didn't treat lesbians(not even joking) so I found another one who say I was worse than most older adults she has seen. I was down to 98lbs I was put on a 12 month treatment. I was only on it for 10 months and was cured. I went back 6 months still cured and even 2 1/2 yrs still cured. But I gained almost 100 lbs after(I'm now 220) treatment and now have a fatty liver. I'm sick all the time depressed and have pains under my ribs. I go from having diarrhea to be constipated every other day. I feel horrible at the time but they say it's not back. I mean u can see my liver just by looking at my stomach. I just wander if having her c so badly has hurt me in other ways even after treatment. IDK but it's hard to work or have a normal life now bc I'm so sick. And most days I can only eat once or twice but small meals and I'm still gaining more weight even though I barely eat. I have not lost weight even w a gym membership. Am I the only one?
Just found out a few months back I have liver disease but that's it. I don't know what to do from here. I quit drinking. I also have Lupus. Would that make me never qualify for liver? Any recommendations on my diet or some advice
Please and thankyoy
I had a massive blood transfusion in the mid '70s, By the late 80's I was feeling something was very wrong health wise, fatigue, joint pain, brain fog etc. Doctor after Doctor said nothing was wrong with me. I bought medical text books and started reading until I found a case that fit. I asked my Doc for a test in '97. Hep C positive, viral load 9million per ML. Two genotypes, 1a & 1b. I treated from early '98 to late '99, 80 weeks with INF and Riba. I felt worst after treatment than before. Four years ago I found a product called Reset. It has given my life back.
I've had the HepC virus for 15 yrs (didn't know). Last 5 years I've suffered IBD, severe skin issues, lots of colon & intestinal problems, diverticulitis, etc. Took several bouts of antibiotics and steroids which worked short term but conditions came back with a vengeance. Saw several doctors, colonoscopy, etc. 2 yrs ago I started researching the internet (tell you in a sec). About 9 months ago my PCP did a complete blood panel showing vitamin deficiencies, H.pylori, Wilson's disease, poor circulation causing skin ulcers that would not heal & more but mostly the HepC virus. He recommended several vitamin supplements as well as other supplements for inflammation and suggested a "Paleo Diet" (NO sugar, NO processed foods, only FRESH or FROZEN veggies (no canned), lean beef, white meat chicken and cold water caught fish. I started all this immediately and with further intense research online started taking more supplements (about 35). Expensive but worth it. I'm elderly and disabled and on low income disability. My supplements are costing me about $475 per month. Most of them were for liver, cell & tissue regeneration, DNA repair, inflammation, circulation, etc. about a month ago my PCP referred me to Hepatologist (keep in mind I started these supplements almost a year ago). No blood work was done other than the initial one which showed everything, mostly the HepC virus which worried me to death. Anyway Hep Dr. scheduled me for liver biopsy.....RESULTS WERE STUNNING !! Even the Dr. was surprised !! Pathology report & additional blood work revealed NO HepC virus at all NONE. It had been completely eradicated. Liver was perfect, no scarring, no cirrhosis, no fibrosis, not in bloodstream, completely 100% perfect. For my benefit I asked my PCP for another blood panel (peace of mind) which is scheduled for 9-12. My tons of research including the LiverSupport website GAVE ME MY LIFE BACK. All the supplements & vitamins I am taking are expensive but well worth the price. You can't put a price tag on LIFE. If you are interested in the supplements I was & still am taking, you can email me at: firstname.lastname@example.org. (Long list). Anyway that's my story. HAVE A LONG & HAPPY LIFE ?
i am a recovering alcoholic i have severe liver disease my consultant told me if i drink i will die i also used a lot of drugs iv been clean for over 2 years now an i must be one of the few becouse i dont want an y addiction in my life anymore i sit in pubs with mates and dont feel the need to drink my liver is damaged so much it will not heal its self i had the last rights heppetitis of the kidneys i suffer with a lot of other illnessess cos of the life style i had im on tabs for the rest of my life but i live a clean an as healrhy life as i can and i often think of all the wasted years cos of my addiction so it is hard if you let it but i think if you put your mind to it you can do it thanks for reading
Boy reading these stories brings back memories and not good ones either. I have a similar story to tell. I have always gone to the doctor for ailments, flu, cold, etc, nothing earth shaking. With all of the blood tests I've had over the years, nothing turned up at all. I have never even tried any drugs, and was just a social drinker with a 1 and a half drink limit because I would fall asleep. After having my second son, I hemorraged and needed many blood transfusions. Advance 40 years and I'm finding out I have Hep C, what a shock. I felt so embarassed because I didn't do anything. So common I find out. I had 2 different treatments with Interfuron and Ribavirin, both very hard to get through, long treatments and both didn't work. Then by chance I find out I have liver cancer and end stage liver disease with about 1 year to live. I'm already on the transplant list and bumped up so I get a liver transplant in 2009, and I'm so very blessed and fortunate. After about 6 months to a year, my liver numbers start to go up and the Hep C is attacking my new liver. My doctor puts me on Solvoldi and Olysio for treatment and the pharmacy called to find out where they should be delivered. Sounds easy huh? I asked how much my co pay was and almost hit the floor. It was almost $10,000.00 and I had to stay on this for 3 months. They got me some help and I went on the drug and success. No body says I'm cured but they tell me there's no sign of Hep C in my blood tests. I am so very blessed and fortunate. Thank God for this help. The older treatments are very hard for the Hep C not so much for the cancer. I just wish I had kept a journal about this disease and treatment. I think sometimes you have to go back and reflect on what you have done and how you have fought the good fight and won. It's good to know you can fight.
I contracted HepC when I was 16yrs old - 50 years ago. At that time, the doctor said it was HepA. I was sick and out of school for two months, (traumatic for a teenager) but once cured it was cured, right? They didn't know about HepC in 1968. I don't know why, but over all the years, I always let my doctors know about the HepA, and so they typically ran liver function blood test which were always fine (even now). A couple of years ago, a new doc recommended I be checked for the Hep C virus because of the CDC's new protocol- and blam- there it was! He put me on a regimen of that nasty shot and pills and I got sick (almost as bad as chemo when I had breast cancer) and it didn't work for me. Three years later another Liver Doctor introduced me to Epclusa. No side effects and so far no evidence of the virus in blood work. It is a miracle drug. The downside for me is that in the 3 short years between diagnosis and successful treatment with Epclusa, my liver went from mild inflammation to cirrhosis. But that's okay. I'm grateful to be alive and ready to fight another day. Now is the time. Get checked, Get treated, Live!
I am 56 and was diagnosed when I was in my 30s...I contacted Hep C in the very early 80s thru drug use. Due to the nature of my work and my interest in a natural health, I worked toward eliminating all drugs and alcohol from my diet. I also focused on my health and strengths and did alot of meditation and moderate exercise. It has been a holistic process for me. I have always been able to keep my liver count down to almost normal. I had shingles many years ago and think it was brought on by stress. I feel that i work very hard on my wellbeing and drink lots of water with lemon and when I was younger, I use to do a yearly fast. I only know what works for me and have learned to trust the wisdom of my body. I have also done years of accupunture and herbs. I try to always take Milk Thistle and Vit D. Am now also doing Tumeric. I believe that everyone is different and I am only responsible for what works for me. I have no judgements about what others do. We are all different and that in my opinion needs to be respected. I can honestly say, I have never been sick a day in my life with Hep C. I finally got a doctor a couple of years ago and when I feel at the top of my game, I get blood work done. I don't make decisions based on fear and I don't let others decide what is best for me. I trust myself. I see my Hep C as a reminder to take care of myself. I don't do things that will make it worse.
When I first found out I had contacted Hepatitis C, I was in denial. Backwards tracking, I researched all aspects of my life. It all came together when it was determined the Hep C came from the USMC tattoo I got in the military. Apparently, back then, the cleanliness of the tattoo parlors weren't yet under government scrutiny like now. The Hep C symptoms didn't start until 6 years after being notified by the county health department due to a blood donation I had been giving yearly. Ascites, tiredness, loss of appetite, and hepatic encephalopathy symptoms became more prevalent. Trips to the hospital for stomach/ lung fluid drainage increased. My body was failing, and I knew I was near my life's end. I asked my father in heaven to give me the spiritual strength, and positive attitude to help myself through the suffering. I felt like I was carrying this cross, this heavy burden, up a mountain. After returning home from my primary doctor's appointment one day, I said to my Lady, I don't know how much more I can go. I'm failing fast. Then about 45 minutes after being home, the phone rang. It was the hospital stating they had found a perfect match for my liver replacement. I had been on the liver transplant list for 3 years, up to that point. I felt like I had reached that mountain top, and there waiting for me was God, with an answer to my prayers. Waiting so long in denial resulted in cirrhosis of the liver, which had advanced to stage 4. Even though, after the transplant, the Hep C virus was still in my body, which was then cleared with antiviral drugs; Daclinza: Ribavarin This August will be my cure date. God is Great, Life is Good !! Live it to the Fullest ! AND HAVE FAITH !! ?
Suprise diagnosis - tried to donate blood & Red Cross sent envolope with the "bad news" (which was due to a blood transfusion @ daughter's birth some 20 years prior!). Did LOTS of of homework, on line, about boosting our bodies' immune system, and underwent a course of weekly belly injections + 4 capsules / day. Prescribed by a university hospital. Cleared the virus in LESS THAN A MONTH. Nobody could believe the "luck"... Don't ever give up. Get involved in your OWN CARE. Get those immune soldiers fighting your battle ... it is more than possible to win! Good luck & keep the faith
I'm 48 years old an have stage 4 chronic hep c an cirrhosis I have fatty liver infiltration on top of it. I have had it since I was 15 years old an never knew it until 2010 when I put on lots of weight an had so much fluid build up doctor said probably had 12 pounds of fluid in each legs fluid in my lungs. Well I no how I got it it was from sharing dirty needles with couple friends. I did the inferon an ribavirin for a yr. It showed it wasn't active. I have bn sick from liver not filtering. so I got sepsis. I am so terrified of the extra suffering when it's my time to go to heaven. In an our of hospital at times. I stay sickly a lot of the time my belly is huge from enlarged liver an spleen. It's pure hell for me but if you happen to catch it early plz take care of yourself cause it's a gruesome death. No alcohol or drugs. I never even heard of it when I was 15 so never think ur invincible cause you will be where I am for u kids. I accept it an thank God for all the understanding of my mind during treatment. I'm living my life to fullest. Hope my story helps someone. Thank you for letting me tell it. Yours truly Brenda. God bless
I was in the navy and remember a corman giving several of us shots with the same needle and when he finished each injection he placed it in a cup of alcohol . this took place in 1972 and a short time later I felt the effects of hep and was told it was serum hepatitis . after discharge I was shooting dope and became yellow and sick for weeks. Years passed and I quit drugs at that time was diagnosed with C and B . I take responsibility for my disease and am looking for treatment near the cincinati area . The VA claims Harvoni is not prescribed due to cost.
Had Hep-C for probably 35 years contacting it through blood transfusions in a 1980 operation. Luckily I have NO liver damage at all and was treated successfully with Harvoni. It's been almost a year since I finished the drug treatment and after two tests no sign of the virus. Have been trying to get my energy levels back to normal as the drug regimen left me very exhausted...also the cost of the drug at 1,000 a day per pill is outrageous and shameful. My medication was fully covered by Medicare but the cost remains a disgrace... recommend lots of greens and fermented vegetables for people trying to recover...in addition a lemon in water first thing in the a.m. helps stimulate the liver to cleanse...milk thistle is another supplement I use....
Hello since last year January I went for some general check up with my wife after some month I go back doctor tell me that I have hepatitis b chronic is like my word is gonna be end that very day .. ..my pont is ..now i have a lot of pain in my chest and my stomach and my doctor say then cant not give me drog now because the varis is not much on me.. What can do now
Hello I'm Svetlana Scheiwein Bulgarian 43 year's old *homeless living in leicester city England more than 6 year's absolutely alone i didn't have . Everything started at 2014 with horrible pain days and nights, months because I was living alone it's was really hard depressed for me. Remember that i was going to many to hospital and the doctors telling me every time that im OKAY! !! At may 2014 is strat my itchings , cant walking distance tired my hands ,body and face was red can't eat and drink my dayli life was extremely bad. Then i been to the GP she chek my blood pressure is was really high she get blood test and the end she tell me yhat i have liver problem she refer me to gastrointerologe and 10 month i was waiting for meeting up with the gastrointerologe. He do new blood test agane more high all my liver enzymes. I was in X ray, MRI ,scan all but not seeen noting then he refer me to liver biopsy after 8th month i bedn there but get scared and back . From this day till this year February i didn't know nothing about #Primary billiar cirose autoimmune hepatitis# Now im waiting agane to meet the gastrointerologe at 30/06/2017 with out any treatment. Dear friends my local Advice and support Down centre in leicester they don't want to me to help me . They always says to me that no place for me because is busy last 3 years . I don't have benefits zero financial no social care help All they tell me go back to Bulgaria. Im on the street at the moment alone i ask my GP practical doctor for Urosofalk 250mg and she give me. No foods no roof no best friend. Im on depresion+panic attacks +schizophrenia . I apply to many times for ESA they send me letter im not allow for ESA because law say that and because I didn't pay NATURAL CONTRIBUTION
I was diagnosed of hepatitis B disease since 2013. I live in abject poverty and have been treating it myself hoping that God will bring healing to my body. I also thank God for helping me to discover this website. I believe I'll discover advice and encouragement from others. God bless!!!
I was diagnosed in 2006. I didn't believe my results and had my doctor re test me 3 times. Yes all three said Hep C. I also was diagnosed with a fatty liver, high cholesterol and hypothyroid all at once. Once I found out I went through the lows of knowing but trusted that with my strong mind set I would clear the virus on my own. Sounds crazy but during one of my specialist appointment the doctor came in and said "what exactly are you here for" so I told him and he said "but you don't have Hep C" . I went back to my family doctor and got checked and rechecked and TRUE I had cleared the virus. Every year I do all my blood work and always Clear. I'm sharing this because even though I cleared the virus I have been suffering symptoms since. It has progressively gotten worse where I have liver pain, itchiness, periodic fatigue, irritability, inflamed saliva glands, adrenal fatigue, high iron, candida and those are only Some of my symptoms. I keep following up with my doctor but he just reassures me that my blood test are clear and my liver function test always come back good. For years I thought all these symptoms were due to working out at high intensities (as I'm a fitness intrustor) but that is not the case. I quit exercising for a year thinking it was making me sick and I only got sicker. I have all the symptoms of Hep but no Hep? Makes no sense to me but it's real.
Thanks God for all , first of all i am hoping for each person to recover from that disease . i get it from where God know , i discover it 2006 , i cope with no medicine except milk thistle and ginseng nature until 6 months ago , i got the new medicine sofaldi , i use it for three months with other 2 liver medicine according to the protocol , i analyses 2 times and i got the negative result hoping it will not be back again , and i am active now not like before at all and thanks God in the end
I have had hep c for decades now . I am awfully lucky. I had a very good friend that just found out he had hep c. He died 2 weeks latter. That scared the hell out of me.
I also had an affirmative with an alcoholic....found out later she was drinking one gallon of cheap vodka a day.
She had it in her purse. Being a man that like to use women in sex I went with it.
Finally I kicked her put, she took a bus back to Apalacia and died on the bus broom lever disease.
Of course now I am freely really shameful and much more aware.
I saw a specialist that had a unique method for looking at my liver. Instead of a biopsy he inserted tube down my throat to liver with a small camera. Works well.
Anybody try this? Anyway I was told I had cirrhosis. I have been clean now for about 2 years and was amazed that my blood test showed me almost cured! I was also taking milk thistle. From all I read, I still think the test was wrong, because I don,t think the liver ever regains good cells to rid of scaring. Any body else have this experience with blood tests? I believe there was an error but my doctor won,t test me again.
I am 65 years old and I found out 5 years ago that I had Hepatitis C just from a routine checkup. My doctor reminded me that I had never had a physical and asked if he could draw my blood and have it tested. Sure I said I didn't have a problem with that. When the results came back I was floored. I did remember when I had my 3rd child back in 1977 my urine was discolored and I was told I had Hepatitis but not to worry an antibiotic would clear it, and it did. The only place I think I could have gotten it was after the Vietnam war when my husband to be came home with it and was a drug user. I had an ultrasound and a biopsy done which showed that my liver wasn't damaged. Mind you I had no symptons whatsoever. My doctor wanted me to go on interferon and ribavirin but after researching the treatment and reading testimonies that the treatment was horrendous I decided to wait until new treatments came out that I was reading about. I waited 5 years and kept getting my levels checked yearly. Then in 2015 Harvoni came out as a treatment. I took it for 8 weeks with absolutely no side effects and my viral load went from over 4 million down to zero. There is hope so never give up
I was diagnosed in 1994 with chronic, active Hep c. I tried interferon but had to stop from convulsions. I have cirrhosis, COPD, high blood pressure, and hemochromatosis iron overload load disease.
I started Harvoni I on Sept 13th. I will be finished December 11th. I was told by my doctor that is was a cakewalk. Maybe a few headaches, trouble sleeping, and general fatigue. That has been anything but true. I have been unable to work because it is way beyond general fatigue. It's called “can’t get off the couch” many days. I feel that these Drs have not been educated on all of the side effects therefore the patients find out the hard way.
I have been cured and am very grateful however when I started having a lot of side effects Dr dismissed me like I was crazy so I got on the internet and did my own research and found many people having the same problems . So my advice to you is to do the homework. Don't trust your Drs info, get your own.
Godspeed to everyone fighting this battle with a cure we have waited so long for. If I can just help one person that will make me feel great. Getting ready to rock my new lease on life soon! God bless to all! We have fought the dragon!
Hi, about 10 years ago I had a live function test. Got told it's a bit fatty. Did not know what that meant. I moved and found a new doctor who explained that I had a fatty liver. He said many people do, don't worry. But he re-did a liver function test he said your liver is a bit high. He left got a new doctor and explained to her my liver is a bit high, what does that mean? She did a test and, yes, it is a bit high. She wanted to know if I would like further tests. “Yes, of course!” I said.
It came back Hep C. I was embarrassed and upset. I felt dirty. I have never done drugs with sharing needles, never even smoked a bit of dope.
Anyway, I saw the specialist on 8-18-15. She scanned my liver with her machine and a ticket comes out tells how bad your liver is. It is scarred very badly now. Cirrhosis of the liver. There is a brand new medication out but $70.000 a course. I’m on disability for other health issues but she believes they might accept me for a trial for the new mess.
They think I've had it over 30 years from prison in the late 70s. I am drinking apple cider vinegar and lemons squirted in to water with milk thistle, kale, brussel sprouts, broccoli, and spinach in a blender once a day . No one told me I've just been reading what your liver likes. Please, can someone tell me that it does not have to become cancer? I've started a group on Facebook. Damaged livers could use some help. Please help by joining and sharing ideas. Please cirrhosis does not have to mean cancer!
First of all I was diagnosed with non alcoholic cirrhosis in 2004. I drank somewhat but for depression and boredom. So it wasn't hard to lay the drink down for good. I received a liver transplant Aug. 2003 and almost died as my donor was allergic to Bactrim (as sulfa antiviral) and they couldn't find the cause of my platelets being hardly 2000. After 4 weeks, and after process of elimination, they found it was due to donor liver being allergic. I was also diagnosed with Hep-C and they said was at very low levels. Even after the transplant I received a liver biopsy every year for 7 years, for about a total of 10 in 9 yrs. I still have Genotype 1 and my transplant nurse said I was an ideal candidate for the Harvoni and Ribavirin. I started taking it 2 weeks ago. Headaches, metal taste (which faded), and my right side hurts. Would like to know how other post transplant patients faired with their treatment. I have 10 weeks to go. Pray for me. I get confused at times and very tired but I want rid of this disease. Let me know how you are and thank God for all who have been cured and for those about to be and for those who are waiting. I will be praying for you all.
I am a nurse and have been for 26 years. I was stuck by a dirty needle 20 years ago before anyone was screening for Hepatitis C. I was getting a routine lab a year and a half ago and found out my platelets were low and liver enzymes elevated. After further testing I was diagnosed with stage 3+ beginning cirrhosis genotype 1a. I started triple threat immediately. I was on Incivek, Ribavirin, Pegasys for 48 weeks. I had to go the full length since I had cirrhosis. I wanted everyone to know that the treatment is hell (mainly the first 3 months) but I am undetected!!! I just had my 3 month after treatment lab and it is still undetected. I cannot say I am cured until after I get my 6 months lab. I was fortunate to have a lot of support, I had some of the many side effects but minor compared to others I read about. But do it people. I was tired, weak, nauseated, but I am cured!!!!
In 2013 in the month of February, I had done a liver function blood test for some of my symptoms like nausea, constipation, weight loss, weakness, insomnia, and the result came with an increased level of sgpt, sgot, bilirubin count. The local doctor prescribed me some medicines but they are of no use since I am taking them for 15 days. I go to another doctor and she told me to do a hepatitis blood test and it came back hepatitis b positive and hdseag positive. My doctor described it to me. I got so frustrated. They say I can't do anything with the virus. There is no medicines or cure for it. They only suggest medications when there are signs of liver damage. My usg was normal. Right now its July 16 2013 and my symptoms are still continuing. My weight reduces by 5kg and I am very weak. My life has become a hell and all of my dreams are shattered.I left my lover for this....
MY NAME IS MILTON AND I WAS INFECTED WITH HEP A, B, AND C ALMOST 41 YEARS AGO. AT THAT TIME THERE WAS NO INFO ON HEP C, I BELIEVE. I GOT HEP C THROUGH SHARING A NEEDLE WITH 2 FRIENDS OF MINE AS A TEENAGER. THIS WAS DURING THE INTRODUCTION OF THE DRUG PLAGUE IN NYC, IN THE LATER 60'S AND EARLY 70'S. I EXPERIMENTED WITH DRUGS AND I HAD TO PAY THE PRICE.
I HAD GONE TO GET A CHECK UP 2-3 YEARS AGO, AND I FOUND OUT I HAD CIRRHOSIS, AND HEP C. WITH ENLARGEMENT OF THE LIVER. AT FIRST, I PUT OFF TREATMENT, BUT THEN, IN JUNE OF 2011, I DECIDED TO GO TO WESTCHESTER MED. CTR. IN VALHALLA, NY, TO THEIR SPECIALIZED HEP C RESEARCH DEPT (I HAD BEEN THERE 2 YEARS BEFORE, BUT INCIVEK WAS NOT OUT YET).
THEN, IN MAY OF 2011, INCIVEK HAD JUST BEEN APPROVED FOR TREATMENT IN COMBO WITH INTERFERON AND RIBAVIRIN. I OPTED TO DO THE TREATMENT AFTER MUCH PRAYER AND SOUL SEARCHING. THANK JESUS CHRIST THAT I DID. I STARTED ON JULY 11, 2011 AND I FINISH IN JUST 2 MORE DAYS, ON DECEMBER 25, 2011 OF ALL DAYS. TALK ABOUT A CHRISTMAS PRESENT FROM GOD. THAT WILL COMPLETE 24 WEEKS OF THE TRIPLE COCKTAIL.
MY VIRAL LOAD WAS 400,000 AND I WAS COMPLETELY CLEARED OF THE HEP C, IN ABOUT A WEEK TO A WEEK AND A DAY-AS SHOWN BY MY WEEKLY BLOOD LABS. I HAVE BEEN HEP C FREE THROUGHOUT THE 24 WEEK REGIMEN AND I HAVE BEEN ASSURED BY THE MEDICAL STAFF THAT I WILL STAY THAT WAY. I DO NOT SMOKE, DRINK, OR USE DRUGS, I JUST MADE MISTAKES OF DISOBEDIENCE AS A TEENAGER. I HAVE AN APPOINTMENT ON JAN 3, 2012, AND THEN IN 6 MONTHS. AFTER THAT, I WILL JUST TAKE MY USUAL ANNUAL PHYSICALS AND VISIT MY DR EVERY 6-12 MONTHS, WHICH I DO ANYWAY.
I DO NOT WANT ANYONE TO THINK THE TREATMENT WAS EASY, IT WAS NOT. THE SIDE EFFECTS ARE SOMETHING ELSE, AND YOU MUST FOLLOW THE MED REGIMEN AND YOUR MEDICAL PERSON'S COUNSEL, AT ALL COSTS. OF COURSE, THEY MUST BE COMPETENT AND IF HEP C IS THEIR SPECIALTY, DO AS YOU ARE TOLD!!! MY RESEARCH NURSE WAS SUCH A GREAT SUPPORT SYSTEM, THAT SHE WOULD RESPOND TO MY CALLS AND EMAILS ALMOST IMMEDIATELY. IT HELPED JUST TO HAVE A MEDICAL PERSON WHO GENUINELY CARED ABOUT WHETHER I LIVED OR DIED, TO BE IN MY CORNER. SHE WOULD EXPLAIN THE SIDE EFFECTS, MAKE APPTS. FOR ME, AND EVEN MADE SURE I RECEIVED MY MEDS MONTHLY BY U.P.S. I CANNOT SAY ENOUGH ABOUT MY NURSE. AT THE CORE OF MY STRENGTH WAS JESUS CHRIST, OF COURSE. MUCH PRAYER, BIBLE READING, CHURCH, AND HAVING OTHER CHRISTIANS AROUND JUST KEPT ME GOING.
JUST TO MENTION SOME OF THE SIDE EFFECTS I EXPERIENCED; (AND REMEMBER, AFTER TREATMENT, THESE SIDE EFFECTS LEAVE OR HAVE LEFT PRIOR, THEY HAPPEN PERIODICALLY-AND SOME PEOPLE DO NOT EXPERIENCE THEM)- WEAKNESS, NAUSEA, CHILLS, MUSCULAR PAIN, ITCHING, COUGHING, LOSS OF APPETITE, INSOMNIA, MINOR DEPRESSION, HEADACHES, MAYBE RASHES, VISION BLURS (NOT OFTEN), ETC. I COUNTERED EVERY SIDE EFFECT, WITH OVER-THE-COUNTER PRODUCTS. FOR COUGHING I JUST HAD COUGH LOZENGES, FOR ITCHING I JUST BOUGHT ANTI ITCHING CREMES, AND I DID ALSO BUY ELOCONÂ®
brand of mometasone furoate cream Cream 0.1%, FOR THE ITCHING, BUT CHECK WITH YOUR DR FIRST, BEFORE USING ANYTHING. FOR OTHER SIDE EFFECTS JUST TALK TO YOUR DR AS TO WHAT TO GET AT THE PHARMACY OR STORE.
IN SPITE OF THE SIDE EFFECTS, YOU WILL ALSO FEEL VERY ALONE AT TIMES AND MAYBE EVEN SAD, BUT YOU CAN DO THE TREATMENT, JUST KEEP YOUR EYES ON THE PRIZE, YOUR NEW LIVER!!! YOU CAN ENDURE AND DO THIS, BECAUSE THE ONLY OTHER ALTERNATIVE COULD BE DEATH. THOUGH NOT EVERYONE WILL DIE FROM THE HEP C-BUT WHY TAKE THE CHANCE WITH YOUR LIFE? STOP PUTTING OFF THE CURE, NOW!!! LOOK AT THIS MEDICAL BREAKTHROUGH AS YOUR RESURRECTION AND HEALING. JUST BE SURE TO TAKE THE HEP C COCKTAIL WITH THE 3 MEDS. THERE ARE NEW MEDS ON THE HORIZON, SUCH AS vx-950 and xv-222, WHICH HAVE YET TO GET FDA APPROVAL, AS TRIALS ARE STILL UNDERWAY FOR THESE 2 NEW HEP C KILLERS.
MAY GOD BLESS YOU ALL AND I PRAY I HAVE BEEN ABLE TO HELP AND ENCOURAGE SOMEONE OUT THERE. AFTER ALL, THAT'S WHAT CHRIST DID!
MILTON R-HEALED AND FORMER HEP C PT.
Hi to everyone . I wanna share my problem regarding to my condition by the way im from philippines. I have hepatitis B i discovered this when i was in college im nursing student at that moment when i found out that i have hepa b i was so sad, all my dreams have gone. Now im still ok and i already accept it , live like normal. But theres one problem i cant find regular job.Im already 26 yr old but i cant find regular job because of my condition. i failed in medical . i really need to find regular job , i feel discriminated because of my condition. but i dont lose hope may be God have other purpose for me..Thank you
I was diagnosed with hepatitis b in the early 70's. I was kind of sick for a month and oh so yellow. Then i was better. Blood tests for the following 30+ years showed only antibodies to the hep b and all doctors told me my body had fought off the virus.
Now, 33 years later I find out by accident that I am possitive for hepatitis c. I was shocked. I'm not sick at all. Additional blood tests show that i have an undetectable viral load and the doctor says no treatment is necessary. Seems that back in the 70's there was no test for hep c and i've probably had the hep c all along. It's strange, i feel different but not sick. Doctor says my immune system basically put the hep c in a neat little package and tucked it away. I can't find much on the internet as far as a story like mine. Anyone else ever heard of anything similar?
I was diagnosed with Cirrhosis with Portal Hypertension after passing a kidney stone about 4 months ago. I went to a local doctor and he said it was because I was an alcoholic (I haven't drank in 20 years) and when I did it was for about 4 years from about 17-20 years old! After some labwork the doctor told me that it was HCV. Now that made more sense. The doctor said that it was because of drugs! But I never used needles! I told him that I was a nurse and had been for about 20 years! I have been exposed to blood on more than a dozen episodes where I came up on a wreck or when I was working as a EMT. I decided to get a second opinion and that is where I found out the truth! I have been on Interferon and Ribaviron therapy for going on 6 weeks. I do great from Monday to Thursday, but on Friday evening I take the shot and I feel like crap the rest of the weekend! Some weekends have been not so bad! While others are terrible! I try to exercise during the week and I play full court basketball 2-3 days during the week for about 1-2 hours each time. In the beginning I had a terrible bout of depression and felt like the world was coming to an end and I was taking Wellbutrin! The doctor raised my dose to 100 mg three times a day and that seemed to do the trick! I still get a little emotional at times and have to be careful about watching movies that can make me cry! LOL!
My wonderful wife and three daughters have been very supportive for me. I have two that are away to school (19yo, 21yo) and one left at home (16yo). I have a very supportive church family as well! I do not know what I would do if I did not have Jesus as my personal Savior and Lord! I found out this last week that my viral load was down significantly and the doctor is very excited at the progress of the eradication of ther virus! I am able to work and am thankful of having a flexible schedule! There are days that I wish that I would just die and am about to lose hope, but those are the days that I have to reach way down and pull myself up by the boot straps! Some time you have to just put on your big boy pants and just deal with it! I am 44 years old and have alot to live for! More importantly, I am not afraid to die since I know where I am going, I think that is what keeps me going! The only problem that I am having is that my platelets stay really low (thrombocytopenia)! And that does concern me! I just keep focused on God, family, work, and a hobby (I am building my own camper). One day at a time!
My daughter was an alcoholic and was drinking very heavily right before her death. She felt like she had the flu so she was taking a lot of tylenol. Before we knew it she was in need of a liver transplant but didn't make it to ever receive the transplant. She died very young and very tragically and it is something I never want to see anyone go through again. I would love to share my story with everyone to prevent this from ever happening again.
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