As part of our Liver Support education mission, here you’ll find stories that have been shared to benefit those with liver concerns and liver disease. These stories come from direct experiences or from experiences that are shared by their loved ones. We hope they are helpful, comforting and insightful.
Others could benefit from knowing your personal experiences. What have you done? What have you learned? What do you wish you had done differently? What is most important for others to know?
Please consider that your personal story could be exactly what others need to read to get them through – even if you don’t think there is anything particularly special about it.
Hi there, my story is long but very educational for anyone who is or has suffered from Liver Cirhosis. just over 5 years ago I was successful in receiving a life saving liver transplant. That is why this is so hard for me to write. I went alcohol free for 5 years. approx. 1 1/2 years ago I began casually drinking again, not cronic by any stretch but fairly regularly. appox 6 months ago I quit, cold turkey again because I felt guilty and ashamed that I had done this after someone saved my life...I have, again, been diagnosed with cirrhosis. I have a healthy diet, work out regularly at a gym, walking at least 3 times a week and it still got me. I have virtually no symptoms except a bit of water retention which my doctor told me that reducing or eliminating salt would help that immensely. I am embarrassed and ashamed that I drank again because it was so easy for me to quit. I was totally flabbergasted to find out I had cirrhosis again but I was told it came on so quickly because I was already compromised by medication I am taking for anti rejection etc. I don't mind saying I am more than a little scared and was wondering If there is anyone out there that has been through what I have and are feeling like I am.....I need some emotional reinforcement to get me through this. thanks for listening
Hi. I was diagnosed in my 30's with NAFLD. It wasn't my diet that caused it, it was actually Excedrin use. I had no idea that NAISD's could cause so much havoc on a person's health. I used to take an Excedrin and within 20 minutes would have pain in my liver area. After much research, I learned about Milk Thistle and NAC supplements. I've been taking them for years and have completely corrected the NAFLD. I still take Excedrin from time to time as I have migraines, but I don't experience the pain anymore! Praise God!
40 years ago I worked in a machine shop as a custodian. Came in before the machinist and cleaned up oil and mopped floors with 111 Trichlorethelene. In the following years, whenever I had a blood work done with a physical exam, I always had elevated enzymes in my liver tests. Doctors couldn’t explain why, it was only years later did I make the 111 Trichlore association. I read about Liveraid/Liverite. Started taking it and when I went for my Executive Physical at Cedars Sinai, my doctor was shocked that after years of elevated liver enzymes, my liver was now testing in normal ranges. He told me that in all the years he practiced medicine, he had never seen this kind of improvement. I got a big smile on my face...he asked me what I had done...I told him about Liveraid/Liverite. He was beyond shocked and took the information down. And as I usually do, I then take my Executive physical results to my primary care physician at Kaiser for follow up items and she immediately noticed and asked me what I had done. Told her as well about Liveraid/Liverite. So will be taking this product for life! Thanks so much. I am very grateful for this product!
It started by Donating blood in 1993. I was written back and said my enzymes were extremely High. And to not donate blood any more. They suggested I go to a Gastroenterologist. I did and He said they did not know much then and whatever script I wanted he would write it. I started leaving. Then he says you know the top Doctors who are studying is this Place and this Dr. I called and had a. Biopsy they wanted me coming back for 6 months I believe it was as some People can fight it off and others progress. I was the latter and Diagnosed with Hepatitis C. On Biopsy I was Stage 2. At this point in time we estimated I could have had the virus 10 to 16 Years. I always wondered why I always felt tired had a low grade fever and my spleen was enlarged. In 1997 i was asked to Participate in a study for Pegylated Interferon. I think it was a year of meds. Then 6 months they Followed you. I did pretty good. Then the side effects started happening. My children were young. I had no help and I asked to leave the study. It was changing me. Mentally. It was really horrible stuff. Since about the year 2000 i have had my blood work monitored and Biopsies. In 2013 i was Hospitalized to run a test to see if I had Cancer. It was not. But I remember the Dr. Yelliing at me to get out and get seen for my Liver. So i did I had a Fibroscan.i left crying by that year i knew my virus had gone into Fibrosis. So I was shocked when the nurse told me my Liver looked like a "burnt pot roast" and I was in Cirrhosis. My Dr. Put in for treatment. Denied once appealled with the info needed and I was approved for Harvoni. I went on it and had no side effects and My virus that was killing my Liver is gone. 3 months of Harvoni. I need to have blood tests 2 times a year make sure it does not come back then ultrasound to make sure I do not start heading into Liver Cancer. These days I am dependent and Have a caregiver and not yet 50. I also have had a stroke after 2 major back surgeries. Having back problems and Cirrhosis is very hard. I am easily fatigued. I have not been able to work since my back surgery as I did caregiving. So I hope I find something soon. I don't get Disability. I am scared pretty soon I will be Homeless. So this is My Story I know quite a lot about the Disease as I have had it for quite a long time but known for 24 years. I don't drink nor do drugs and try to do my best. One day at a time. A lot of People don't understand that when you kill the virus the Cirrhosis is still there. Scarring from many years with the virus. I was Lucky I had 2 Children and they were tested both Negative. Any questions contact me. Where will this story may be shared? Thank you,Jena
Hi, I am rashid, Now i am 43 years old. I am married. My job criteria is Graphics design. every time i have some trace regarding my job circle and family also. from the 10 years and above i have constipation and my body immune system is not properly working for the day to night. every time i have some absent mind and irritation. my liver function test ALT result is Mild fatty liver in 4 years ago. all time i feel dresseling and all time stomak gas spread in all body. this is very much harmfull for my life style. pls. suggest me for better cure.
I am 57 and was diagnosed with End Stage Liver Failure due to alcoholic cirrhosis. I knew I was in trouble when the whites of my eyes turned yellow. I swelled up like the blueberry girl on Willy Wonka! They gave me my first "tap" and took 6 liters of brown fluid out of my gut. I am 5'1". I was given six months to a year. I quit drinking, went to treatment and then church. My "Meld" score is currently 12. I was on the transplant list, but got better so I'm in the "pending" column for now. 4 years now and I'm always extremely tired. My joints ache terribly. My urine is Amber color most the time. I take Lactulose to "flush" the ammonia out. It helps me think better as well. Milk Thistle helps my liver. I believe cutting out processed foods, salt, sugar, all the fun stuff, helps enormously. Your whole diet can make such a big difference. Just reading about other people's experiences helps me Alot. I wish nurses and doctors would stop judging and assuming, and basically treat you like a "drug seeker" when you go to ER in pain, not knowing if your dying, or you have cancer now, or your liver (what's left of it) is exploding. Every body has a unique story, a different cross to bear. Believe me, I didn't set out to become an alcoholic, and I am 4 years sober now, and there's not alot of support with this disease, only judgement and ignorance. Just filling us up with pharmaceuticals is not helping a person whose liver is not functioning properly. The most important thing is to keep your system flushed and eat only fruits, vegies, nuts and legumes. That's just my opinion. Thanks for reading my story.
I got Hep c from the tainted blood scandal by the Red cross for buying tainted blood. And Bill Clinton for selling it to the free world killing over a million people. Gays prisoners drug addicts alcoholics with poison in their blood. It's about money. I've studied this scandle nice 1991. I was in the hospital dying but as always I've kept myself alive by doing herbs that our Lord used to heal everyone with. I've been told I've not got long. I'd like the monies owed. As a real true blooded Canadain lost my great grand farther. My two uncles and my farther in the forces they died or killed. Think that makes me a true blooded brother.
Hello Everyone my name is Ron and I live in Calgary Canada. I contacted hep-c from tainted blood sold to Canada by a certain source. i know the source ive studied hep-c now for twenty yrs. I've had it since 1986/7. I got hooked in a meat plant under my arm it just missed a main arterie. But I was bleeding out so I got blood there is a big ambulance and on my way to the trauma center then they fixed me up. I have not drank for 33 yr August 22. Never smoked and never done drugs. It took a few years to find out why I was sick all the time. They even thought it was my gull blatter so they removed it in 1989. After that I went from 240lbs to 172 lbs. Felt a little better but I told my family doc I don't have gull troubles. He said yes you do so I went and had it taken out. Never should have it was the hep c in my body. So after that I moved and started travelling Canada the country I love. I went 10yrs feeling great. I went on herbs used for thousands of yrs to help me. Well it worked for a bunch of years so I thought I was me along. No way anymore. I moved to s small town got married have two young children uninfected by this deadly virus. Well in 2008 I started feeling sick again. I have contacted the blood.ca hep c compensation people three times in the last dew years without a response. I'm due the funds owed still from 1987 . Later in 2015 I went on Havoni it stopped the hep c but I got it to late they tell me so a transplant is out. My liver is not strong enough to go through a transplant makes know sense. My guts are sticking out of my body now pain every minute. My legs swell up Hugh even walking 10 minutes. My family I've lost my wife is way younger Ryan is 16 my boy and Shardae is just 13. There both clean as same for my wife. She Peggy my wife said she cant take anymore so ive lost my new family. The compensation has taken me 33yrs to get this far. I know I'm elagable for the comp what's the hold up. I've wait years now. I'm poor very poor and sick. I have nothing left now at 63 i am living with my sick mother. Im in so much pain for so very long. I'm now lossing the battle. My abdomen.is Hugh and distorted very ugly. Anyone out there want to help just text or messenger me. May God be with you and your loved ones.
I was suffering from fatty liver disease after liver donation to my father. His liver was completely damaged due to hepatitis c. After 6 months of liver donation i developed fatty liver because of alcohol use. No i quit alcohol and started taking vitamin E cap. twice daily. I also tried a vibrating massage at low power mode or you can say on minimum vibrating mode over the upper abdomen right side where liver is placed by God. I really took some few days for recovery from fatty liver. Note: you will have to stop drinking as soon as possible if you came to know that your liver is fatty.
I am 54 years old and in 1984 I was married and I had lost two pregnancies that year… The last one being an etopic pregnancy. The tube had ruptured earlier in the day and I had to have emergency surgery. I almost didn’t make it through the surgery… I needed 2 blood transfusions. 30 something years later I’m having some health issues more to do with allergies but while we were testing my blood for different things I kept seeing the commercials for hepatitis C… Being born in 1963 I said test my blood. Sure enough. My insurance covered Zepatier. My medication arrived… ( Packaged like I have never seen any medication packaged before my life!!) my medication was $54,600 for the 12 weeks that I personally need to take it for… One pill a day… For 12 weeks I felt absolutely nothing while I was taking the medication… Nothing… I didn’t feel more sleepy I didn’t feel anything… I just took the medication. I went overseas for three weeks right when I was done taking the medication… When I came back my doctor had sent me a prescription to have my blood taken .Which I did. A certain manner time went by and I did not hear back from my doctor so I called them… They said they would have her call me back… A few minutes later my ACTUAL doctor called me! ( A rarity these days !!) I pick up the phone and she said “you’re cured“! ( her office specializes in treating hepatitis C but she is also my Doctor Who performs my colonoscopy is… So I know her fairly well ) . I said I bet you don’t get to say that very often knowing that she is also a colon doctor.She said “yeah ,unfortunately not”. We started talking about my liver and she said my liver looked better than any liver she has seen in so long… I said you’re kidding me? She said no your liver is just about pristine… I was thinking about all the drinking I did in my 20s… LOL and the link the drinking I still do now occasionally ( very occasionally more just joking !!) but regardless I’m thinking about how I couldn’t believe that it was as good as she sad. Couldn’t believe the medication really worked as described… Couldn’t believe I was truly cured! Having breast cancer five years ago I never thought I was going to get good news again! Anyways the main reason that I wanted to write this was I wanted to know if somebody else experienced this as well because I have been putting this in Google trying to see if this is happened anybody else and if it has can somebody contact me and just let me know that it has I have been waking up my whole life or almost my whole life at 5 o’clock in the morning 5 o’clock in the morning has been my time even when I was younger… I’ve had hepatitis C over 30 years… And almost that whole 30 years or I would say that whole 30 years I’ve been waking up at 5 o’clock in the morning . Going through menopause I’ve been waking up at 4 o’clock as well… But almost to the day and this is not a joke… To the day that I stopped taking those upper tier and I was cured I started sleeping till 67 even sometimes 8 o’clock I sleep in like a normal person… If I go to sleep later while then I wake up later if I go to sleep earlier well then I might wake up at 6 o’clock but I haven’t woke up at 5 o’clock I don’t think once since I heard the words “ your cured”. Coincidence? I suppose so… Almost to the day… How strange… I’m thinking it has to be connected… And that is the gods honest truth I have not woke up once at 5 o’clock in the morning since being cured. If anything similar has happened to anyone here my email is above I would just be curious to know… Thanks for listening! Or reading I should say! I hope everybody has the good luck that I had… Modern medicine ??????
I was diagnosed with cirrhosis of the liver three years ago but I don't know how long I've had it i am 37 and i was a alcoholic but been alcohol free for three years + I've had a fibro scan which the score was 79 but I've not had any information on what this means only that'll need a transplant in time at the moment am in good health but recently I've been feeling really bad pain in my liver for the last few days and my stools are black most days and when I we it smells absolutely disgusting and brown in colour I was wondering if anyone else has had this problem and what it means I'll be great full for any information thankyou
Received a blood transfusion in 1980 when my daughter was born. A few weeks later, I became jaundiced, itchy, very fatigued & my dr said it was non-A,non-B Hepatitis. Wasn't called hepatitis C yet. Against my GI dr wishes I chose not to do the standard route of interferon & ribavirin. Instead I did all I could to optimize my immune system. I found a dr in NYC & went for monthly vitamin C Infusions. I did this for almost 20 yrs until Harvoni came along. I'm now cleared of the virus. I didn't drink at all throughout those years. My liver has some signs of cirrhosis but w a healthy diet it's beginning to reverse itself.
I contracted hep c at the age of 17 when I ran away and only shot up for 2 weeks using a needle after someone I thought was clean. I got severely ill and went to the hospital. They told me I was infected. I waited 2 yes to get on treatment bc I ran away again. I was a troubled teen and at the time I didn't really know what it was but I thought it was a joke. When I went to get on treatment the first Dr told me that he didn't treat lesbians(not even joking) so I found another one who say I was worse than most older adults she has seen. I was down to 98lbs I was put on a 12 month treatment. I was only on it for 10 months and was cured. I went back 6 months still cured and even 2 1/2 yrs still cured. But I gained almost 100 lbs after(I'm now 220) treatment and now have a fatty liver. I'm sick all the time depressed and have pains under my ribs. I go from having diarrhea to be constipated every other day. I feel horrible at the time but they say it's not back. I mean u can see my liver just by looking at my stomach. I just wander if having her c so badly has hurt me in other ways even after treatment. IDK but it's hard to work or have a normal life now bc I'm so sick. And most days I can only eat once or twice but small meals and I'm still gaining more weight even though I barely eat. I have not lost weight even w a gym membership. Am I the only one?
Just found out a few months back I have liver disease but that's it. I don't know what to do from here. I quit drinking. I also have Lupus. Would that make me never qualify for liver? Any recommendations on my diet or some advice Please and thankyoy
I had a massive blood transfusion in the mid '70s, By the late 80's I was feeling something was very wrong health wise, fatigue, joint pain, brain fog etc. Doctor after Doctor said nothing was wrong with me. I bought medical text books and started reading until I found a case that fit. I asked my Doc for a test in '97. Hep C positive, viral load 9million per ML. Two genotypes, 1a & 1b. I treated from early '98 to late '99, 80 weeks with INF and Riba. I felt worst after treatment than before. Four years ago I found a product called Reset. It has given my life back.
I've had the HepC virus for 15 yrs (didn't know). Last 5 years I've suffered IBD, severe skin issues, lots of colon & intestinal problems, diverticulitis, etc. Took several bouts of antibiotics and steroids which worked short term but conditions came back with a vengeance. Saw several doctors, colonoscopy, etc. 2 yrs ago I started researching the internet (tell you in a sec). About 9 months ago my PCP did a complete blood panel showing vitamin deficiencies, H.pylori, Wilson's disease, poor circulation causing skin ulcers that would not heal & more but mostly the HepC virus. He recommended several vitamin supplements as well as other supplements for inflammation and suggested a "Paleo Diet" (NO sugar, NO processed foods, only FRESH or FROZEN veggies (no canned), lean beef, white meat chicken and cold water caught fish. I started all this immediately and with further intense research online started taking more supplements (about 35). Expensive but worth it. I'm elderly and disabled and on low income disability. My supplements are costing me about $475 per month. Most of them were for liver, cell & tissue regeneration, DNA repair, inflammation, circulation, etc. about a month ago my PCP referred me to Hepatologist (keep in mind I started these supplements almost a year ago). No blood work was done other than the initial one which showed everything, mostly the HepC virus which worried me to death. Anyway Hep Dr. scheduled me for liver biopsy.....RESULTS WERE STUNNING !! Even the Dr. was surprised !! Pathology report & additional blood work revealed NO HepC virus at all NONE. It had been completely eradicated. Liver was perfect, no scarring, no cirrhosis, no fibrosis, not in bloodstream, completely 100% perfect. For my benefit I asked my PCP for another blood panel (peace of mind) which is scheduled for 9-12. My tons of research including the LiverSupport website GAVE ME MY LIFE BACK. All the supplements & vitamins I am taking are expensive but well worth the price. You can't put a price tag on LIFE. If you are interested in the supplements I was & still am taking, you can email me at: [email protected] (Long list). Anyway that's my story. HAVE A LONG & HAPPY LIFE ?
i am a recovering alcoholic i have severe liver disease my consultant told me if i drink i will die i also used a lot of drugs iv been clean for over 2 years now an i must be one of the few becouse i dont want an y addiction in my life anymore i sit in pubs with mates and dont feel the need to drink my liver is damaged so much it will not heal its self i had the last rights heppetitis of the kidneys i suffer with a lot of other illnessess cos of the life style i had im on tabs for the rest of my life but i live a clean an as healrhy life as i can and i often think of all the wasted years cos of my addiction so it is hard if you let it but i think if you put your mind to it you can do it thanks for reading
Boy reading these stories brings back memories and not good ones either. I have a similar story to tell. I have always gone to the doctor for ailments, flu, cold, etc, nothing earth shaking. With all of the blood tests I've had over the years, nothing turned up at all. I have never even tried any drugs, and was just a social drinker with a 1 and a half drink limit because I would fall asleep. After having my second son, I hemorraged and needed many blood transfusions. Advance 40 years and I'm finding out I have Hep C, what a shock. I felt so embarassed because I didn't do anything. So common I find out. I had 2 different treatments with Interfuron and Ribavirin, both very hard to get through, long treatments and both didn't work. Then by chance I find out I have liver cancer and end stage liver disease with about 1 year to live. I'm already on the transplant list and bumped up so I get a liver transplant in 2009, and I'm so very blessed and fortunate. After about 6 months to a year, my liver numbers start to go up and the Hep C is attacking my new liver. My doctor puts me on Solvoldi and Olysio for treatment and the pharmacy called to find out where they should be delivered. Sounds easy huh? I asked how much my co pay was and almost hit the floor. It was almost $10,000.00 and I had to stay on this for 3 months. They got me some help and I went on the drug and success. No body says I'm cured but they tell me there's no sign of Hep C in my blood tests. I am so very blessed and fortunate. Thank God for this help. The older treatments are very hard for the Hep C not so much for the cancer. I just wish I had kept a journal about this disease and treatment. I think sometimes you have to go back and reflect on what you have done and how you have fought the good fight and won. It's good to know you can fight.
I contracted HepC when I was 16yrs old - 50 years ago. At that time, the doctor said it was HepA. I was sick and out of school for two months, (traumatic for a teenager) but once cured it was cured, right? They didn't know about HepC in 1968. I don't know why, but over all the years, I always let my doctors know about the HepA, and so they typically ran liver function blood test which were always fine (even now). A couple of years ago, a new doc recommended I be checked for the Hep C virus because of the CDC's new protocol- and blam- there it was! He put me on a regimen of that nasty shot and pills and I got sick (almost as bad as chemo when I had breast cancer) and it didn't work for me. Three years later another Liver Doctor introduced me to Epclusa. No side effects and so far no evidence of the virus in blood work. It is a miracle drug. The downside for me is that in the 3 short years between diagnosis and successful treatment with Epclusa, my liver went from mild inflammation to cirrhosis. But that's okay. I'm grateful to be alive and ready to fight another day. Now is the time. Get checked, Get treated, Live!
I am 56 and was diagnosed when I was in my 30s...I contacted Hep C in the very early 80s thru drug use. Due to the nature of my work and my interest in a natural health, I worked toward eliminating all drugs and alcohol from my diet. I also focused on my health and strengths and did alot of meditation and moderate exercise. It has been a holistic process for me. I have always been able to keep my liver count down to almost normal. I had shingles many years ago and think it was brought on by stress. I feel that i work very hard on my wellbeing and drink lots of water with lemon and when I was younger, I use to do a yearly fast. I only know what works for me and have learned to trust the wisdom of my body. I have also done years of accupunture and herbs. I try to always take Milk Thistle and Vit D. Am now also doing Tumeric. I believe that everyone is different and I am only responsible for what works for me. I have no judgements about what others do. We are all different and that in my opinion needs to be respected. I can honestly say, I have never been sick a day in my life with Hep C. I finally got a doctor a couple of years ago and when I feel at the top of my game, I get blood work done. I don't make decisions based on fear and I don't let others decide what is best for me. I trust myself. I see my Hep C as a reminder to take care of myself. I don't do things that will make it worse.
When I first found out I had contacted Hepatitis C, I was in denial. Backwards tracking, I researched all aspects of my life. It all came together when it was determined the Hep C came from the USMC tattoo I got in the military. Apparently, back then, the cleanliness of the tattoo parlors weren't yet under government scrutiny like now. The Hep C symptoms didn't start until 6 years after being notified by the county health department due to a blood donation I had been giving yearly. Ascites, tiredness, loss of appetite, and hepatic encephalopathy symptoms became more prevalent. Trips to the hospital for stomach/ lung fluid drainage increased. My body was failing, and I knew I was near my life's end. I asked my father in heaven to give me the spiritual strength, and positive attitude to help myself through the suffering. I felt like I was carrying this cross, this heavy burden, up a mountain. After returning home from my primary doctor's appointment one day, I said to my Lady, I don't know how much more I can go. I'm failing fast. Then about 45 minutes after being home, the phone rang. It was the hospital stating they had found a perfect match for my liver replacement. I had been on the liver transplant list for 3 years, up to that point. I felt like I had reached that mountain top, and there waiting for me was God, with an answer to my prayers. Waiting so long in denial resulted in cirrhosis of the liver, which had advanced to stage 4. Even though, after the transplant, the Hep C virus was still in my body, which was then cleared with antiviral drugs; Daclinza: Ribavarin This August will be my cure date. God is Great, Life is Good !! Live it to the Fullest ! AND HAVE FAITH !! ?
Suprise diagnosis - tried to donate blood & Red Cross sent envolope with the "bad news" (which was due to a blood transfusion @ daughter's birth some 20 years prior!). Did LOTS of of homework, on line, about boosting our bodies' immune system, and underwent a course of weekly belly injections + 4 capsules / day. Prescribed by a university hospital. Cleared the virus in LESS THAN A MONTH. Nobody could believe the "luck"... Don't ever give up. Get involved in your OWN CARE. Get those immune soldiers fighting your battle ... it is more than possible to win! Good luck & keep the faith
I'm 48 years old an have stage 4 chronic hep c an cirrhosis I have fatty liver infiltration on top of it. I have had it since I was 15 years old an never knew it until 2010 when I put on lots of weight an had so much fluid build up doctor said probably had 12 pounds of fluid in each legs fluid in my lungs. Well I no how I got it it was from sharing dirty needles with couple friends. I did the inferon an ribavirin for a yr. It showed it wasn't active. I have bn sick from liver not filtering. so I got sepsis. I am so terrified of the extra suffering when it's my time to go to heaven. In an our of hospital at times. I stay sickly a lot of the time my belly is huge from enlarged liver an spleen. It's pure hell for me but if you happen to catch it early plz take care of yourself cause it's a gruesome death. No alcohol or drugs. I never even heard of it when I was 15 so never think ur invincible cause you will be where I am for u kids. I accept it an thank God for all the understanding of my mind during treatment. I'm living my life to fullest. Hope my story helps someone. Thank you for letting me tell it. Yours truly Brenda. God bless
I was in the navy and remember a corman giving several of us shots with the same needle and when he finished each injection he placed it in a cup of alcohol . this took place in 1972 and a short time later I felt the effects of hep and was told it was serum hepatitis . after discharge I was shooting dope and became yellow and sick for weeks. Years passed and I quit drugs at that time was diagnosed with C and B . I take responsibility for my disease and am looking for treatment near the cincinati area . The VA claims Harvoni is not prescribed due to cost.
Had Hep-C for probably 35 years contacting it through blood transfusions in a 1980 operation. Luckily I have NO liver damage at all and was treated successfully with Harvoni. It's been almost a year since I finished the drug treatment and after two tests no sign of the virus. Have been trying to get my energy levels back to normal as the drug regimen left me very exhausted...also the cost of the drug at 1,000 a day per pill is outrageous and shameful. My medication was fully covered by Medicare but the cost remains a disgrace... recommend lots of greens and fermented vegetables for people trying to recover...in addition a lemon in water first thing in the a.m. helps stimulate the liver to cleanse...milk thistle is another supplement I use....
Hello since last year January I went for some general check up with my wife after some month I go back doctor tell me that I have hepatitis b chronic is like my word is gonna be end that very day .. ..my pont is ..now i have a lot of pain in my chest and my stomach and my doctor say then cant not give me drog now because the varis is not much on me.. What can do now
Hello I'm Svetlana Scheiwein Bulgarian 43 year's old *homeless living in leicester city England more than 6 year's absolutely alone i didn't have . Everything started at 2014 with horrible pain days and nights, months because I was living alone it's was really hard depressed for me. Remember that i was going to many to hospital and the doctors telling me every time that im OKAY! !! At may 2014 is strat my itchings , cant walking distance tired my hands ,body and face was red can't eat and drink my dayli life was extremely bad. Then i been to the GP she chek my blood pressure is was really high she get blood test and the end she tell me yhat i have liver problem she refer me to gastrointerologe and 10 month i was waiting for meeting up with the gastrointerologe. He do new blood test agane more high all my liver enzymes. I was in X ray, MRI ,scan all but not seeen noting then he refer me to liver biopsy after 8th month i bedn there but get scared and back . From this day till this year February i didn't know nothing about #Primary billiar cirose autoimmune hepatitis# Now im waiting agane to meet the gastrointerologe at 30/06/2017 with out any treatment. Dear friends my local Advice and support Down centre in leicester they don't want to me to help me . They always says to me that no place for me because is busy last 3 years . I don't have benefits zero financial no social care help All they tell me go back to Bulgaria. Im on the street at the moment alone i ask my GP practical doctor for Urosofalk 250mg and she give me. No foods no roof no best friend. Im on depresion+panic attacks +schizophrenia . I apply to many times for ESA they send me letter im not allow for ESA because law say that and because I didn't pay NATURAL CONTRIBUTION
I was diagnosed of hepatitis B disease since 2013. I live in abject poverty and have been treating it myself hoping that God will bring healing to my body. I also thank God for helping me to discover this website. I believe I'll discover advice and encouragement from others. God bless!!!
I was diagnosed in 2006. I didn't believe my results and had my doctor re test me 3 times. Yes all three said Hep C. I also was diagnosed with a fatty liver, high cholesterol and hypothyroid all at once. Once I found out I went through the lows of knowing but trusted that with my strong mind set I would clear the virus on my own. Sounds crazy but during one of my specialist appointment the doctor came in and said "what exactly are you here for" so I told him and he said "but you don't have Hep C" . I went back to my family doctor and got checked and rechecked and TRUE I had cleared the virus. Every year I do all my blood work and always Clear. I'm sharing this because even though I cleared the virus I have been suffering symptoms since. It has progressively gotten worse where I have liver pain, itchiness, periodic fatigue, irritability, inflamed saliva glands, adrenal fatigue, high iron, candida and those are only Some of my symptoms. I keep following up with my doctor but he just reassures me that my blood test are clear and my liver function test always come back good. For years I thought all these symptoms were due to working out at high intensities (as I'm a fitness intrustor) but that is not the case. I quit exercising for a year thinking it was making me sick and I only got sicker. I have all the symptoms of Hep but no Hep? Makes no sense to me but it's real.
Thanks God for all , first of all i am hoping for each person to recover from that disease . i get it from where God know , i discover it 2006 , i cope with no medicine except milk thistle and ginseng nature until 6 months ago , i got the new medicine sofaldi , i use it for three months with other 2 liver medicine according to the protocol , i analyses 2 times and i got the negative result hoping it will not be back again , and i am active now not like before at all and thanks God in the end
I have had hep c for decades now . I am awfully lucky. I had a very good friend that just found out he had hep c. He died 2 weeks latter. That scared the hell out of me. I also had an affirmative with an alcoholic....found out later she was drinking one gallon of cheap vodka a day. She had it in her purse. Being a man that like to use women in sex I went with it. Finally I kicked her put, she took a bus back to Apalacia and died on the bus broom lever disease. Of course now I am freely really shameful and much more aware. I saw a specialist that had a unique method for looking at my liver. Instead of a biopsy he inserted tube down my throat to liver with a small camera. Works well. Anybody try this? Anyway I was told I had cirrhosis. I have been clean now for about 2 years and was amazed that my blood test showed me almost cured! I was also taking milk thistle. From all I read, I still think the test was wrong, because I don,t think the liver ever regains good cells to rid of scaring. Any body else have this experience with blood tests? I believe there was an error but my doctor won,t test me again.
I am 65 years old and I found out 5 years ago that I had Hepatitis C just from a routine checkup. My doctor reminded me that I had never had a physical and asked if he could draw my blood and have it tested. Sure I said I didn't have a problem with that. When the results came back I was floored. I did remember when I had my 3rd child back in 1977 my urine was discolored and I was told I had Hepatitis but not to worry an antibiotic would clear it, and it did. The only place I think I could have gotten it was after the Vietnam war when my husband to be came home with it and was a drug user. I had an ultrasound and a biopsy done which showed that my liver wasn't damaged. Mind you I had no symptons whatsoever. My doctor wanted me to go on interferon and ribavirin but after researching the treatment and reading testimonies that the treatment was horrendous I decided to wait until new treatments came out that I was reading about. I waited 5 years and kept getting my levels checked yearly. Then in 2015 Harvoni came out as a treatment. I took it for 8 weeks with absolutely no side effects and my viral load went from over 4 million down to zero. There is hope so never give up
I was diagnosed in 1994 with chronic, active Hep c. I tried interferon but had to stop from convulsions. I have cirrhosis, COPD, high blood pressure, and hemochromatosis iron overload load disease.
I started Harvoni I on Sept 13th. I will be finished December 11th. I was told by my doctor that is was a cakewalk. Maybe a few headaches, trouble sleeping, and general fatigue. That has been anything but true. I have been unable to work because it is way beyond general fatigue. It's called “can’t get off the couch” many days. I feel that these Drs have not been educated on all of the side effects therefore the patients find out the hard way.
I have been cured and am very grateful however when I started having a lot of side effects Dr dismissed me like I was crazy so I got on the internet and did my own research and found many people having the same problems . So my advice to you is to do the homework. Don't trust your Drs info, get your own. Godspeed to everyone fighting this battle with a cure we have waited so long for. If I can just help one person that will make me feel great. Getting ready to rock my new lease on life soon! God bless to all! We have fought the dragon!
Hi, about 10 years ago I had a live function test. Got told it's a bit fatty. Did not know what that meant. I moved and found a new doctor who explained that I had a fatty liver. He said many people do, don't worry. But he re-did a liver function test he said your liver is a bit high. He left got a new doctor and explained to her my liver is a bit high, what does that mean? She did a test and, yes, it is a bit high. She wanted to know if I would like further tests. “Yes, of course!” I said.
It came back Hep C. I was embarrassed and upset. I felt dirty. I have never done drugs with sharing needles, never even smoked a bit of dope.
Anyway, I saw the specialist on 8-18-15. She scanned my liver with her machine and a ticket comes out tells how bad your liver is. It is scarred very badly now. Cirrhosis of the liver. There is a brand new medication out but $70.000 a course. I’m on disability for other health issues but she believes they might accept me for a trial for the new mess.
They think I've had it over 30 years from prison in the late 70s. I am drinking apple cider vinegar and lemons squirted in to water with milk thistle, kale, brussel sprouts, broccoli, and spinach in a blender once a day . No one told me I've just been reading what your liver likes. Please, can someone tell me that it does not have to become cancer? I've started a group on Facebook. Damaged livers could use some help. Please help by joining and sharing ideas. Please cirrhosis does not have to mean cancer!
First of all I was diagnosed with non alcoholic cirrhosis in 2004. I drank somewhat but for depression and boredom. So it wasn't hard to lay the drink down for good. I received a liver transplant Aug. 2003 and almost died as my donor was allergic to Bactrim (as sulfa antiviral) and they couldn't find the cause of my platelets being hardly 2000. After 4 weeks, and after process of elimination, they found it was due to donor liver being allergic. I was also diagnosed with Hep-C and they said was at very low levels. Even after the transplant I received a liver biopsy every year for 7 years, for about a total of 10 in 9 yrs. I still have Genotype 1 and my transplant nurse said I was an ideal candidate for the Harvoni and Ribavirin. I started taking it 2 weeks ago. Headaches, metal taste (which faded), and my right side hurts. Would like to know how other post transplant patients faired with their treatment. I have 10 weeks to go. Pray for me. I get confused at times and very tired but I want rid of this disease. Let me know how you are and thank God for all who have been cured and for those about to be and for those who are waiting. I will be praying for you all.
I am a nurse and have been for 26 years. I was stuck by a dirty needle 20 years ago before anyone was screening for Hepatitis C. I was getting a routine lab a year and a half ago and found out my platelets were low and liver enzymes elevated. After further testing I was diagnosed with stage 3+ beginning cirrhosis genotype 1a. I started triple threat immediately. I was on Incivek, Ribavirin, Pegasys for 48 weeks. I had to go the full length since I had cirrhosis. I wanted everyone to know that the treatment is hell (mainly the first 3 months) but I am undetected!!! I just had my 3 month after treatment lab and it is still undetected. I cannot say I am cured until after I get my 6 months lab. I was fortunate to have a lot of support, I had some of the many side effects but minor compared to others I read about. But do it people. I was tired, weak, nauseated, but I am cured!!!!
In 2013 in the month of February, I had done a liver function blood test for some of my symptoms like nausea, constipation, weight loss, weakness, insomnia, and the result came with an increased level of sgpt, sgot, bilirubin count. The local doctor prescribed me some medicines but they are of no use since I am taking them for 15 days. I go to another doctor and she told me to do a hepatitis blood test and it came back hepatitis b positive and hdseag positive. My doctor described it to me. I got so frustrated. They say I can't do anything with the virus. There is no medicines or cure for it. They only suggest medications when there are signs of liver damage. My usg was normal. Right now its July 16 2013 and my symptoms are still continuing. My weight reduces by 5kg and I am very weak. My life has become a hell and all of my dreams are shattered.I left my lover for this....
MY NAME IS MILTON AND I WAS INFECTED WITH HEP A, B, AND C ALMOST 41 YEARS AGO. AT THAT TIME THERE WAS NO INFO ON HEP C, I BELIEVE. I GOT HEP C THROUGH SHARING A NEEDLE WITH 2 FRIENDS OF MINE AS A TEENAGER. THIS WAS DURING THE INTRODUCTION OF THE DRUG PLAGUE IN NYC, IN THE LATER 60'S AND EARLY 70'S. I EXPERIMENTED WITH DRUGS AND I HAD TO PAY THE PRICE. I HAD GONE TO GET A CHECK UP 2-3 YEARS AGO, AND I FOUND OUT I HAD CIRRHOSIS, AND HEP C. WITH ENLARGEMENT OF THE LIVER. AT FIRST, I PUT OFF TREATMENT, BUT THEN, IN JUNE OF 2011, I DECIDED TO GO TO WESTCHESTER MED. CTR. IN VALHALLA, NY, TO THEIR SPECIALIZED HEP C RESEARCH DEPT (I HAD BEEN THERE 2 YEARS BEFORE, BUT INCIVEK WAS NOT OUT YET). THEN, IN MAY OF 2011, INCIVEK HAD JUST BEEN APPROVED FOR TREATMENT IN COMBO WITH INTERFERON AND RIBAVIRIN. I OPTED TO DO THE TREATMENT AFTER MUCH PRAYER AND SOUL SEARCHING. THANK JESUS CHRIST THAT I DID. I STARTED ON JULY 11, 2011 AND I FINISH IN JUST 2 MORE DAYS, ON DECEMBER 25, 2011 OF ALL DAYS. TALK ABOUT A CHRISTMAS PRESENT FROM GOD. THAT WILL COMPLETE 24 WEEKS OF THE TRIPLE COCKTAIL. MY VIRAL LOAD WAS 400,000 AND I WAS COMPLETELY CLEARED OF THE HEP C, IN ABOUT A WEEK TO A WEEK AND A DAY-AS SHOWN BY MY WEEKLY BLOOD LABS. I HAVE BEEN HEP C FREE THROUGHOUT THE 24 WEEK REGIMEN AND I HAVE BEEN ASSURED BY THE MEDICAL STAFF THAT I WILL STAY THAT WAY. I DO NOT SMOKE, DRINK, OR USE DRUGS, I JUST MADE MISTAKES OF DISOBEDIENCE AS A TEENAGER. I HAVE AN APPOINTMENT ON JAN 3, 2012, AND THEN IN 6 MONTHS. AFTER THAT, I WILL JUST TAKE MY USUAL ANNUAL PHYSICALS AND VISIT MY DR EVERY 6-12 MONTHS, WHICH I DO ANYWAY. I DO NOT WANT ANYONE TO THINK THE TREATMENT WAS EASY, IT WAS NOT. THE SIDE EFFECTS ARE SOMETHING ELSE, AND YOU MUST FOLLOW THE MED REGIMEN AND YOUR MEDICAL PERSON'S COUNSEL, AT ALL COSTS. OF COURSE, THEY MUST BE COMPETENT AND IF HEP C IS THEIR SPECIALTY, DO AS YOU ARE TOLD!!! MY RESEARCH NURSE WAS SUCH A GREAT SUPPORT SYSTEM, THAT SHE WOULD RESPOND TO MY CALLS AND EMAILS ALMOST IMMEDIATELY. IT HELPED JUST TO HAVE A MEDICAL PERSON WHO GENUINELY CARED ABOUT WHETHER I LIVED OR DIED, TO BE IN MY CORNER. SHE WOULD EXPLAIN THE SIDE EFFECTS, MAKE APPTS. FOR ME, AND EVEN MADE SURE I RECEIVED MY MEDS MONTHLY BY U.P.S. I CANNOT SAY ENOUGH ABOUT MY NURSE. AT THE CORE OF MY STRENGTH WAS JESUS CHRIST, OF COURSE. MUCH PRAYER, BIBLE READING, CHURCH, AND HAVING OTHER CHRISTIANS AROUND JUST KEPT ME GOING. JUST TO MENTION SOME OF THE SIDE EFFECTS I EXPERIENCED; (AND REMEMBER, AFTER TREATMENT, THESE SIDE EFFECTS LEAVE OR HAVE LEFT PRIOR, THEY HAPPEN PERIODICALLY-AND SOME PEOPLE DO NOT EXPERIENCE THEM)- WEAKNESS, NAUSEA, CHILLS, MUSCULAR PAIN, ITCHING, COUGHING, LOSS OF APPETITE, INSOMNIA, MINOR DEPRESSION, HEADACHES, MAYBE RASHES, VISION BLURS (NOT OFTEN), ETC. I COUNTERED EVERY SIDE EFFECT, WITH OVER-THE-COUNTER PRODUCTS. FOR COUGHING I JUST HAD COUGH LOZENGES, FOR ITCHING I JUST BOUGHT ANTI ITCHING CREMES, AND I DID ALSO BUY ELOCONÂ® brand of mometasone furoate cream Cream 0.1%, FOR THE ITCHING, BUT CHECK WITH YOUR DR FIRST, BEFORE USING ANYTHING. FOR OTHER SIDE EFFECTS JUST TALK TO YOUR DR AS TO WHAT TO GET AT THE PHARMACY OR STORE. IN SPITE OF THE SIDE EFFECTS, YOU WILL ALSO FEEL VERY ALONE AT TIMES AND MAYBE EVEN SAD, BUT YOU CAN DO THE TREATMENT, JUST KEEP YOUR EYES ON THE PRIZE, YOUR NEW LIVER!!! YOU CAN ENDURE AND DO THIS, BECAUSE THE ONLY OTHER ALTERNATIVE COULD BE DEATH. THOUGH NOT EVERYONE WILL DIE FROM THE HEP C-BUT WHY TAKE THE CHANCE WITH YOUR LIFE? STOP PUTTING OFF THE CURE, NOW!!! LOOK AT THIS MEDICAL BREAKTHROUGH AS YOUR RESURRECTION AND HEALING. JUST BE SURE TO TAKE THE HEP C COCKTAIL WITH THE 3 MEDS. THERE ARE NEW MEDS ON THE HORIZON, SUCH AS vx-950 and xv-222, WHICH HAVE YET TO GET FDA APPROVAL, AS TRIALS ARE STILL UNDERWAY FOR THESE 2 NEW HEP C KILLERS. MAY GOD BLESS YOU ALL AND I PRAY I HAVE BEEN ABLE TO HELP AND ENCOURAGE SOMEONE OUT THERE. AFTER ALL, THAT'S WHAT CHRIST DID!
MILTON R-HEALED AND FORMER HEP C PT.
Hi to everyone . I wanna share my problem regarding to my condition by the way im from philippines. I have hepatitis B i discovered this when i was in college im nursing student at that moment when i found out that i have hepa b i was so sad, all my dreams have gone. Now im still ok and i already accept it , live like normal. But theres one problem i cant find regular job.Im already 26 yr old but i cant find regular job because of my condition. i failed in medical . i really need to find regular job , i feel discriminated because of my condition. but i dont lose hope may be God have other purpose for me..Thank you
I was diagnosed with hepatitis b in the early 70's. I was kind of sick for a month and oh so yellow. Then i was better. Blood tests for the following 30+ years showed only antibodies to the hep b and all doctors told me my body had fought off the virus.
Now, 33 years later I find out by accident that I am possitive for hepatitis c. I was shocked. I'm not sick at all. Additional blood tests show that i have an undetectable viral load and the doctor says no treatment is necessary. Seems that back in the 70's there was no test for hep c and i've probably had the hep c all along. It's strange, i feel different but not sick. Doctor says my immune system basically put the hep c in a neat little package and tucked it away. I can't find much on the internet as far as a story like mine. Anyone else ever heard of anything similar?
I was diagnosed with Cirrhosis with Portal Hypertension after passing a kidney stone about 4 months ago. I went to a local doctor and he said it was because I was an alcoholic (I haven't drank in 20 years) and when I did it was for about 4 years from about 17-20 years old! After some labwork the doctor told me that it was HCV. Now that made more sense. The doctor said that it was because of drugs! But I never used needles! I told him that I was a nurse and had been for about 20 years! I have been exposed to blood on more than a dozen episodes where I came up on a wreck or when I was working as a EMT. I decided to get a second opinion and that is where I found out the truth! I have been on Interferon and Ribaviron therapy for going on 6 weeks. I do great from Monday to Thursday, but on Friday evening I take the shot and I feel like crap the rest of the weekend! Some weekends have been not so bad! While others are terrible! I try to exercise during the week and I play full court basketball 2-3 days during the week for about 1-2 hours each time. In the beginning I had a terrible bout of depression and felt like the world was coming to an end and I was taking Wellbutrin! The doctor raised my dose to 100 mg three times a day and that seemed to do the trick! I still get a little emotional at times and have to be careful about watching movies that can make me cry! LOL!
My wonderful wife and three daughters have been very supportive for me. I have two that are away to school (19yo, 21yo) and one left at home (16yo). I have a very supportive church family as well! I do not know what I would do if I did not have Jesus as my personal Savior and Lord! I found out this last week that my viral load was down significantly and the doctor is very excited at the progress of the eradication of ther virus! I am able to work and am thankful of having a flexible schedule! There are days that I wish that I would just die and am about to lose hope, but those are the days that I have to reach way down and pull myself up by the boot straps! Some time you have to just put on your big boy pants and just deal with it! I am 44 years old and have alot to live for! More importantly, I am not afraid to die since I know where I am going, I think that is what keeps me going! The only problem that I am having is that my platelets stay really low (thrombocytopenia)! And that does concern me! I just keep focused on God, family, work, and a hobby (I am building my own camper). One day at a time!
My daughter was an alcoholic and was drinking very heavily right before her death. She felt like she had the flu so she was taking a lot of tylenol. Before we knew it she was in need of a liver transplant but didn't make it to ever receive the transplant. She died very young and very tragically and it is something I never want to see anyone go through again. I would love to share my story with everyone to prevent this from ever happening again.
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